Search Results - "DOSA, Nienke P"

Youth with Spina Bifida and Transitions: Health and Social Participation in a Nationally Represented Sample by Liptak, Gregory S., MD, MPH, Kennedy, Jenny A., BS, Dosa, Nienke P., MD, MPH

“…Objective To describe outcomes and identify factors that affect social participation in youth and young adults with spina bifida. Study design Prospective data…”
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Population Pharmacokinetics of Oral Baclofen in Pediatric Patients with Cerebral Palsy by He, Yang, PhD, Brunstrom-Hernandez, Janice E., MD, Thio, Liu Lin, MD, PhD, Lackey, Shellie, RN, Gaebler-Spira, Deborah, MD, Kuroda, Maxine M., PhD, MPH, Stashinko, Elaine, PhD, RN, Hoon, Alexander H., MD, MPH, Vargus-Adams, Jilda, MD, Stevenson, Richard D., MD, Lowenhaupt, Stephanie, RN, CCRC, McLaughlin, John F., MD, Christensen, Ana, MPH, Dosa, Nienke P., MD, MPH, Butler, Maureen, BSN, Schwabe, Aloysia, MD, Lopez, Christina, CCRP, Roge, Desiree, MD, Kennedy, Diane, RN, PhD, CCRC, Tilton, Ann, MD, Krach, Linda E., MD, Lewandowski, Andrew, PhD, Dai, Hongying, PhD, Gaedigk, Andrea, PhD, Leeder, J. Steven, PharmD, PhD, Jusko, William J., PhD

“…Objective To characterize the population pharmacokinetics (PK) of oral baclofen and assess impact of patient-specific covariates in children with cerebral…”
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It Takes a Village: Building Community With Assistive Technology by Locastro, Mary M., Robinson, Jason, Robinson, Erin, Dosa, Nienke P.

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CASK pathogenic variant which expands the clinical spectrum for MICPCH syndrome in an adult patient by Tellerday, Jack, Black, Jennifer, Schuessler, Donald C., Dosa, Nienke P., Alcaraz, Wendy, Lebel, Robert Roger

“…The CASK gene and its product protein kinase have been associated with microcephaly with pontine and cerebellar hypoplasia (MICPCH) syndrome and various other…”
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Weight Status of Children Participating in the National Spina Bifida Patient Registry by Polfuss, Michele, Liu, Tiebin, Smith, Kathryn, Murphy, Pamela S, Ward, Elisabeth, Thibadeau, Judy, Dosa, Nienke P, Wang, Yinding, Sawin, Kathleen J

“…Describe the distribution of weight status categories and determine factors associated with overweight and obesity (OW/OB) in children and adolescents with…”
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Social Participation in a Nationally Representative Sample of Older Youth and Young Adults With Autism by LIPTAK, Gregory S, KENNEDY, Jenny A, DOSA, Nienke P

“…To describe social participation and identify factors that affect it in a nationally representative sample of adolescents and young adults with autism…”
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Spina Bifida Grown Up by LIPTAK, Gregory S, GARVER, Kimberlee, DOSA, Nienke P

“…The majority of people with spina bifida in the United States are now older than 18 years of age. Health care delivery for adults with this condition should…”
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Addressing social determinants of health through customization: Quality improvement, telemedicine, and care coordination to serve immigrant families by Castillo, Heidi, Locastro, Mary M., Fremion, Ellen, Malhotra, Anjali, Morales, Rosanna, Timmons, Kelly, Jarosz, Susan, Dosa, Nienke P., Castillo, Jonathan

“…PURPOSE: The purpose of this project was to establish a pathway for electronic medical record (EMR) customization, utilizing quality improvement methodology,…”
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Life course health and healthcare utilization among adults with spina bifida by Liptak, Gregory S, Robinson, Laura M, Davidson, Philip W, Dziorny, Adam, Lavalley, Rebecca, Flaherty, Mary Grace, Dosa, Nienke P

“…Aim To evaluate the prevalence of organ system disorders and describe healthcare utilization among adults with spina bifida at a regional clinic. Method This…”
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Research Needs for Effective Transition in Lifelong Care of Congenital Genitourinary Conditions: A Workshop Sponsored by the National Institute of Diabetes and Digestive and Kidney Diseases by Hsieh, Michael H, Wood, Hadley M, Dicianno, Brad E, Dosa, Nienke P, Gomez-Lobo, Veronica, Mattoo, Tej K, Misseri, Rosalia, Norton, Jenna M, Sawin, Kathleen J, Scal, Peter, Wright, James E, Star, Robert A, Bavendam, Tamara

“…Over the last 5 decades, health-care advances have yielded quantum improvements in the life expectancy of individuals with congenital genitourinary conditions…”
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Obesity across the lifespan among persons with spina bifida by Dosa, Nienke P., Foley, John T., Eckrich, Michael, Woodall-Ruff, Denise, Liptak, Gregory S.

“…Purpose. Identify risk factors for obesity across the lifespan for individuals with spina bifida. Methods. Cross sectional chart review study of 203 patients…”
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Spina Bifida Global Learning Collaborative: Educating the next generation of clinicians, researchers, and advocates by Dosa, Nienke P., Ahmed, Yakob S., Alriksson-Schmidt, Ann, Castillo, Heidi, Contepomi, Silvana, Locastro, Mary M., Koning, Jan, Koutsouras, George, Kutwa, Elly, Mahorta, Anjali, MacFarland, Shade, Öhrvall, Ann-Marie, O’Neill, Patricia, Overvelde, Anneloes, Peny-Dahlstrand, Marie, Shaw, Andrea, Stockman, Jessica, Tovar-Spinoza, Zulma, Castillo, Jonathan

“…PURPOSE: This project aimed to launch an international learning community to guide the development of a spina bifida (SB) curriculum for global health…”
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Genetic epidemiology of neural tube defects by Lupo, Philip J, Agopian, A J, Castillo, Heidi, Castillo, Jonathan, Clayton, Gerald H, Dosa, Nienke P, Hopson, Betsy, Joseph, David B, Rocque, Brandon G, Walker, William O, Wiener, John S, Mitchell, Laura E

“…It has been estimated that 60-70% of neural tube defects (NTDs) have a genetic component, but few causative genes have been identified. The lack of information…”
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Myelomeningocele by Liptak, Gregory S, Dosa, Nienke P

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Excess Risk of Severe Acute Illness in Children With Chronic Health Conditions by Dosa, Nienke P, Boeing, Nancy M, MS, NP, Kanter, Robert K

“…We estimated the relative risk (RR) of an unscheduled pediatric intensive care unit (ICU) admission as a marker for severe acute illness in children with…”
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Incidence, Prevalence, and Characteristics of Fractures in Children, Adolescents, and Adults With Spina Bifida by Dosa, Nienke P., Eckrich, Michael F., Katz, Danielle A., Turk, Margaret, Liptak, Gregory S.

“…Objective: To determine the age-specific incidence, prevalence, and characteristics of fractures in persons with spina bifida. Design: Year-long historical…”
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Mother knows best: medical record management for patients with spina bifida during the transition from pediatric to adult care by Østerlund, Carsten S, Dosa, Nienke P, Arnott Smith, Catherine

“…The personal health record has potential to improve health care transition for an emerging population of pediatric patients with complex chronic conditions who…”
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PICUBASICS: an on-line resource for the diagnosis and management of acute illness in children with chronic conditions and disabilities by Dosa, Nienke P, Cole, Lynn, Kanter, Robert K, Liptak, Gregory S

“…Children with disabilities and chronic conditions are more likely than their healthy peers to be admitted to emergency rooms, to be hospitalized, and to…”
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Improving Guideline Adherence for the Diagnosis of ADHD in an Ambulatory Pediatric Setting by Olson, Brad G., Rosenbaum, Paula F., Dosa, Nienke P., Roizen, Nancy J.

“…Background.— The American Academy of Pediatrics (AAP) has published clinical practice guidelines for the diagnosis of Attention Deficit Hyperactivity Disorder…”
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Empowering children and families with information technology by D'Alessandro, D M, Dosa, N P

“…Patient empowerment is the enhanced ability of patients to actively understand and influence their health status. Information is the key to patient…”
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