Using Patient-Reported Outcome Measures for Quality Improvement in Clinical Genetics: an Exploratory Study

Using Patient-Reported Outcome Measures for Quality Improvement in Clinical Genetics: an Exploratory Study

International advocacy of patient-centred healthcare delivery has led to emphasis on the (re)design and evaluation of healthcare processes and outcomes from a patient perspective. Patient-reported outcome measures (PROMs) have significant potential to inform such attempts. However there is limited u...

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Bibliographic Details
Published in:Journal of genetic counseling Vol. 26; no. 5; pp. 1017 - 1028
Main Authors: Costal Tirado, A., McDermott, A. M., Thomas, C., Ferrick, D., Harris, J., Edwards, A., McAllister, Marion
Format: Journal Article
Language:English
Published: New York Springer US 01-10-2017
Blackwell Publishing Ltd
Subjects:
Advocacy
Biomedical and Life Sciences
Biomedicine
Clinical decision making
Clinical genetics
Clinical outcomes
Clinical Psychology
Data processing
Ethics
Exploratory
Genetic counseling
Genetic Counseling - organization & administration
Genetic Testing
Genetics
Gynecology
Health care
Health care delivery
Human Genetics
Humans
Original Research
Patient Reported Outcome Measures
Patient-centered care
Patient-Centered Care - organization & administration
Patient‐reported outcome measures (PROMs)
Professional development
Public Health
Quality control
Quality improvement
Quality Improvement - organization & administration
Quality management
Quality of care
Quality of Life
Quality of service
Response rates
Quality improvement
Clinical genetics
Exploratory
Patient-reported outcome measures (PROMs)
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Summary:International advocacy of patient-centred healthcare delivery has led to emphasis on the (re)design and evaluation of healthcare processes and outcomes from a patient perspective. Patient-reported outcome measures (PROMs) have significant potential to inform such attempts. However there is limited understanding of the processes by which this can be achieved. This exploratory study followed attempts to utilise two different PROMs measures to support service quality improvement in clinical genetics. PROMs used were the Genetic Counseling Outcome Scale (GCOS-24), a well-validated clinical genetics-specific PROM and Euroqol (EQ-5D), a generic PROM favoured by the UK National Institute for Health and Excellence (NICE). Both of these PROMs enable pre/post intervention comparison. A service audit tool was also used, premised on a patient-reported experience measure. In addition, the study draws on interviews with clinical staff to identify challenges associated with the use of PROMs (response rate, data collection, analysis). Benefits are also explored and include the provision of insight into patients’ needs; complementing clinical judgement; identification of needs being met, evidencing the benefit of services provided; prompting consideration of areas requiring attention; and encouraging professional development.
Bibliography:The online version of this article (doi:10.1007/s10897‐017‐0079‐6) contains supplementary material, which is available to authorized users.
Electronic supplementary material
ObjectType-Article-1
SourceType-Scholarly Journals-1
ObjectType-Feature-2
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ISSN:1059-7700
1573-3599
DOI:10.1007/s10897-017-0079-6