Comparing impact on the family and insurance coverage in children with cerebral palsy and children with another special healthcare need

Background Families and caregivers of children with special healthcare needs (CSHCN) often experience financial difficulties, have unmet physical and mental health needs, and are at increased risk of marital problems due to the stress caused by carrying for their child. Within the larger population...

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Published in:	Child : care, health & development Vol. 44; no. 3; pp. 370 - 377
Main Authors:	Schaible, B., Colquitt, G., Caciula, M. C., Carnes, A., Li, L., Moreau, N.
Format:	Journal Article
Language:	English
Published:	England Blackwell Publishing Ltd 01-05-2018
Subjects:	Adolescent Caregiver burden Caregivers Caregiving Caring Cerebral Palsy Cerebral Palsy - economics Cerebral Palsy - epidemiology Cerebral Palsy - rehabilitation Child Child Care - economics child disability Children & youth Cost of Illness coverage Disability Disabled Children - rehabilitation Families & family life Family Family (Sociological Unit) family functioning Female Financing, Personal - statistics & numerical data Health Care Surveys Health Expenditures - statistics & numerical data Health Expenditures - trends Health insurance Health Needs health services Health Services Accessibility - economics Health Services Accessibility - statistics & numerical data Health Services Needs and Demand - economics Health Services Needs and Demand - statistics & numerical data Health Services Research Health status Households Humans Insurance Insurance coverage Insurance Coverage - economics Insurance Coverage - statistics & numerical data Insurance, Health - economics Insurance, Health - statistics & numerical data Male Marital Instability Marital relations Medical Assistance - statistics & numerical data Mental health National Surveys Polls & surveys Relatives Severity Special needs children State Surveys United States - epidemiology Variables Youth United States coverage cerebral palsy family functioning health services child disability
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Summary:	Background Families and caregivers of children with special healthcare needs (CSHCN) often experience financial difficulties, have unmet physical and mental health needs, and are at increased risk of marital problems due to the stress caused by carrying for their child. Within the larger population of CHSCN, young people with cerebral palsy (CP) have more unmet needs due to the complexity and potential severity of the disability. The purpose of this study was to identify factors associated with differences in insurance coverage and impact on the family of children with CP and other CHSCN. Methods The data were taken from the National Survey of Children with Special Health Care Needs, which was designed to examine state‐ and national‐level estimates of CSHCN. Three variables examined differences in insurance coverage between those children diagnosed with CP versus all other CSHCN: insurance coverage for the previous year, current insurance coverage, and adequacy of insurance coverage. Four variables representing different indicators of family impact were used to assess differences between children with CP versus all other CSHCN: out‐of‐pocket expenses for healthcare, family financial burden, hours per week that family members spent caring for the child, and impact on family work life. Results The results of this study showed significant differences between households with a child with CP and a child with another health special need in terms of insurance coverage, indicating a tendency of children with CP to be insured the entire year. As for the impact on the family in households with children with CP versus other CSHCN, there were significant differences in all four variables that were analysed. Conclusions There is limited evidence highlighting differences between the impact of caring for a child with CP and caring for other CSHCN. Caring for a child with CP has a significant impact on the family, despite insurance coverage.
Bibliography:	ObjectType-Article-1 SourceType-Scholarly Journals-1 ObjectType-Feature-2 content type line 23
ISSN:	0305-1862 1365-2214
DOI:	10.1111/cch.12547