Search Results - "Chapman, Chere A.T."

FDA Patient-Focused Drug Development Guidances: Considerations for Trial Readiness in Rare Developmental and Epileptic Encephalopathies by Berg, Anne T, Ludwig, Natasha N, Wojnaroski, Mary, Chapman, Chere A T, Hommer, Rebecca, Conecker, Gabrielle, Hecker, JayEtta Z, Downs, Jenny

“…Developmental and epileptic encephalopathies (DEE) are rare, often monogenic neurodevelopmental conditions. Most affected individuals have refractory seizures…”
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The GOAL‐Hēm journey: Shared decision making and patient‐centred outcomes by Roberts, Jonathan C., Richardson, Sharon, Miles, Moses E., Stanley, Justin, Chapman, Chere A. T., Denne, Michael, Caicedo, Jorge, Rockwood, Kenneth, Recht, Michael

“…Introduction GOAL‐Hēm is a novel, haemophilia‐specific, patient‐centred outcome measure (PCOM) based on goal attainment scaling, allowing people with…”
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What does better look like in individuals with severe neurodevelopmental impairments? A qualitative descriptive study on SCN2A-related developmental and epileptic encephalopathy by Downs, Jenny, Ludwig, Natasha N., Wojnaroski, Mary, Keeley, Jessica, Schust Myers, Leah, Chapman, Chere A. T., Hecker, JayEtta, Conecker, Gabrielle, Berg, Anne T.

“…Purpose There are limited psychometric data on outcome measures for children with Developmental Epileptic Encephalopathies (DEEs), beyond measuring seizures,…”
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Novel approaches to measuring cognition in individuals with severe to profound functional impairment: A pilot study in SCN2A-related disorder by Ludwig, Natasha N., Wojnaroski, Mary, Suskauer, Stacy J., Slomine, Beth S., Kaiser, Ariela, Paltell, Katherine, Evans, Lindsey, Tucker, Karis, Chapman, Chere A.T., Conecker, Gabrielle, Hecker, JayEtta, Myers, Leah Schust, Downs, Jenny, Berg, Anne T.

“…•Valid outcome assessments of neurodevelopment are lacking for those with profound impairments.•This pilot study explored measures in individuals with…”
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The Symptoms Targeted for Monitoring in a Web-Based Tracking Tool by Caregivers of People With Dementia and Agitation: Cross-Sectional Study by Rockwood, Kenneth, Sanon Aigbogun, Myrlene, Stanley, Justin, Wong, Helen, Dunn, Taylor, Chapman, Chère A T, Howlett, Susan E, Miguelez, Maia, McGarrigle, Lisa, Baker, Ross A

“…In people with dementia, neuropsychiatric symptoms (NPSs), especially agitation, are associated with worse quality of life and caregiver burden. As NPSs may…”
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Cost and cost-effectiveness of antiretroviral therapy for HIV infection in Singapore by Paton, Nicholas I, Chapman, Chere A T, Sangeetha, S, Mandalia, Sundhiya, Bellamy, Richard, Beck, Eduard J

“…The objective of this study was to determine the cost and cost-effectiveness of antiretroviral therapy (ART) in Singapore. The use and cost of HIV services was…”
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