Search Results - "Byun, Malia"

Living with a genetic, undiagnosed or rare disease: A longitudinal journalling study through the COVID‐19 pandemic by Byun, Malia, Feller, Hollie, Ferrie, Monica, Best, Stephanie

“…Introduction COVID‐19 changed the way we lived with uncertainty from the outset as the pandemic impacted every aspect of our lives from well‐being, socializing…”
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Co-designing interventions to ‘live well’: experiences and perceptions of the Genetic, Undiagnosed and Rare Disease (GUaRD) community by Beadell, Inez, Byun, Malia, Feller, Hollie, Ferrie, Monica, Best, Stephanie

“…The Genetic, Undiagnosed and Rare Disease community faces a range of hurdles to live their ‘best life’ including physical, social and psychological barriers…”
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