Search Results - "Bulkley, Joanna"

Ongoing ostomy self-care challenges of long-term rectal cancer survivors by Bulkley, Joanna E., McMullen, Carmit K., Grant, Marcia, Wendel, Christopher, Hornbrook, Mark C., Krouse, Robert S.

“…Purpose Surgical treatment for rectal cancer (RC) can result in an intestinal ostomy that requires lifelong adaptation and investment of physical, cognitive,…”
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Sexual Function and Health-Related Quality of Life in Long-Term Rectal Cancer Survivors by Sun, Virginia, Grant, Marcia, Wendel, Christopher S., McMullen, Carmit K., Bulkley, Joanna E., Herrinton, Lisa J., Hornbrook, Mark C., Krouse, Robert S.

“…Sexual dysfunction is a treatment sequela in survivors of rectal cancer (RC). Differences in health-related quality of life (HRQOL) can occur based on ostomy…”
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Decision Regret Related to Urinary Diversion Choice among Patients Treated with Cystectomy by Check, Devon K, Leo, Michael C, Banegas, Matthew P, Bulkley, Joanna E, Danforth, Kim N, Gilbert, Scott M, Kwan, Marilyn L, Rosetti, Maureen O'Keeffe, McMullen, Carmit K

“…Patients who undergo cystectomy due to bladder cancer can elect an ileal conduit or a neobladder for urinary diversion. Decision regret related to this choice…”
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Use of the Electronic Health Record to Assess Prevalence of Anemia and Iron Deficiency in Pregnancy by Sharma, Andrea J, Ford, Nicole D, Bulkley, Joanna E, Jenkins, Lindsay M, Vesco, Kimberly K, Williams, Anne M

“…In the United States, the prevalence of anemia, iron deficiency (ID), and iron-deficiency anemia (IDA) during pregnancy remains largely unknown as data at the…”
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Greatest Challenges of Rectal Cancer Survivors: Results of a Population-Based Survey by McMullen, Carmit K, Bulkley, Joanna E, Altschuler, Andrea, Wendel, Christopher S, Grant, Marcia, Hornbrook, Mark C, Sun, Virginia, Krouse, Robert S

“…BACKGROUND:Eliciting the priorities of cancer survivors is essential to address the specific needs of cancer survivor subgroups. OBJECTIVE:The purpose of this…”
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Bias in Self-reported Prepregnancy Weight Across Maternal and Clinical Characteristics by Sharma, Andrea J., Bulkley, Joanna E., Stoneburner, Ashley B., Dandamudi, Padmavati, Leo, Michael, Callaghan, Williams M., Vesco, Kimberly K.

“…Objectives Prepregnancy body mass index (BMI) and gestational weight gain (GWG) are known determinants of maternal and child health; calculating both requires…”
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Improving management of the genitourinary syndrome of menopause: evaluation of a health system–based, cluster-randomized intervention by Vesco, Kimberly K., Leo, Michael C., Bulkley, Joanna E., Beadle, Kate R., Stoneburner, Ashley B., Francisco, Melanie, Clark, Amanda L.

“…Genitourinary symptoms are common in postmenopausal women and adversely affect the quality of life. National surveys and data collected from our healthcare…”
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Predictors of Long-Term Survival among High-Grade Serous Ovarian Cancer Patients by Clarke, Christina L, Kushi, Lawrence H, Chubak, Jessica, Pawloski, Pamala A, Bulkley, Joanna E, Epstein, Mara M, Burnett-Hartman, Andrea N, Powell, Bethan, Pearce, Celeste L, Spencer Feigelson, Heather

“…Relatively little is known about factors associated with long-term survival (LTS) following a diagnosis of ovarian cancer. We conducted a retrospective study…”
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A framework for measuring the cost to families of caring for children's health: the design, methodology, and study population of the r-Kids study by Bulkley, Joanna E, Varga, Alexandra M, Dickerson, John F, Crawford, Phil, Croen, Lisa A, Daida, Yihe G, Fombonne, Eric, Hatch, Brigit, Lee, April, Massolo, Maria, Vaughn, Katherine, Lynch, Frances L

“…All families experience financial and time costs related to caring for their children's health. Understanding the economic burden faced by families of children…”
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The impact of autism spectrum disorder on parent employment: Results from the r‐Kids study by Lynch, Frances L., Bulkley, Joanna E., Varga, Alexandra, Crawford, Phillip, Croen, Lisa A., Daida, Yihe G., Fombonne, Eric, Hatch, Brigit, Massolo, Maria, Dickerson, John F.

“…Parents of children with autism spectrum disorder (ASD) and other chronic health conditions often face exceptional caregiving demands that can lead to…”
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The association of bowel function, participation in life activities, and quality of life in rectal cancer survivors by Bulkley, Joanna E., McMullen, Carmit K., Rawlings, Andreea M., Krouse, Robert S., Francisco, Melanie C., Sterrett, Andrew T., Burnett-Hartman, Andrea N., Pawloski, Pamala A., Corley, Douglas A., Colwell, Janice C., Feigelson, Heather Spencer

“…Purpose To evaluate whether limited participation in life activities is associated with quality of life (QOL) in rectal cancer survivors, and if so, whether…”
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Self-reported depression and perceived financial burden among long-term rectal cancer survivors by Chongpison, Yuda, Hornbrook, Mark C., Harris, Robin B., Herrinton, Lisa J., Gerald, Joe K., Grant, Marcia, Bulkley, Joanna E., Wendel, Christopher S., Krouse, Robert S.

“…Objectives Types of surgery for rectal cancer (RC), including permanent ostomy (PO) or temporary ostomy followed by anastomosis (TO) or initial anastomosis…”
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Development of a Goal Elicitation Measure to Support Choice about Urinary Diversion by Patients with Bladder Cancer by Leo, Michael C, Gilbert, Scott M, Wendel, Christopher S, Krouse, Robert S, Grant, Marcia, Danforth, Kim N, Kwan, Marilyn L, Harrison, Teresa N, Bulkley, Joanna E, McMullen, Carmit K

“…Patient centered care aims to align treatment with patient goals, especially when treatment options have equivalent clinical outcomes. For surgeries with…”
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Dietary and Behavioral Adjustments to Manage Bowel Dysfunction After Surgery in Long-Term Colorectal Cancer Survivors by Sun, Virginia, Grant, Marcia, Wendel, Christopher S., McMullen, Carmit K., Bulkley, Joanna E., Altschuler, Andrea, Ramirez, Michelle, Baldwin, Carol M., Herrinton, Lisa J., Hornbrook, Mark C., Krouse, Robert S.

“…Background Bowel dysfunction is a known complication of colorectal cancer (CRC) surgery. Poor bowel control has a detrimental impact on survivors’…”
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An accessible, relational, inclusive, and actionable (ARIA) model of genetic counseling compared with usual care: Results of a randomized controlled trial by Joseph, Galen, Leo, Michael C., Riddle, Leslie, Guerra, Claudia, Amendola, Laura M., Gilmore, Marian J., Rolf, Bradley A., Dorschner, Michael O., Zepp, Jamilyn, Biesecker, Barbara B., Caruncho, Mikaella, Hunter, Jessica Ezzell, Keast, Erin, Lewis, Hannah S., Duenas, Devan, Kauffman, Tia, Bulkley, Joanna E., Anderson, Katherine P., Jarvik, Gail P., Goddard, Katrina A.B., Wilfond, Benjamin S.

“…Effective approaches to communicate genomic information are needed to ensure equitable care. In a randomized controlled superiority trial, we tested a novel…”
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Emotional and Behavioral Problems in Youth with Autism: High Prevalence and Impact on Functioning by Fombonne, Eric, Croen, Lisa A., Bulkley, Joanna E., Varga, Alexandra M., Daida, Yihe G., Hatch, Brigit A., Dickerson, John F., Lynch, Frances L.

“…Emotional and behavioral problems (EBPs) may co-occur with autism spectrum disorder (ASD) and impair children's functioning beyond autism symptomatology. We…”
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Implementing evidence-based assertions of clinical actionability in the context of secondary findings: Updates from the ClinGen Actionability Working Group by Pak, Christine M., Gilmore, Marian J., Bulkley, Joanna E., Chakraborty, Pranesh, Dagan-Rosenfeld, Orit, Foreman, Ann Katherine M., Gollob, Michael H., Jenkins, Charisma L., Katz, Alexander E., Lee, Kristy, Meeks, Naomi, O’Daniel, Julianne M., Posey, Jennifer E., Rego, Shannon M., Shah, Neethu, Steiner, Robert D., Stergachis, Andrew B., Subramanian, Sai Lakshmi, Trotter, Tracy, Wallace, Kathleen, Williams, Marc S., Goddard, Katrina A.B., Buchanan, Adam H., Manickam, Kandamurugu, Powell, Bradford, Ezzell Hunter, Jessica

“…The ClinGen Actionability Working Group (AWG) developed an evidence-based framework to generate actionability reports and scores of gene-condition pairs in the…”
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Early Term Delivery and Health Care Utilization in the First Year of Life by Dietz, Patricia M., DrPH, Rizzo, Joanne H., MPA, England, Lucinda J., MD, Callaghan, William M., MD, Vesco, Kimberly K., MD, Bruce, F. Carol, MPH, Bulkley, Joanna E., PhD, Sharma, Andrea J., PhD, Hornbrook, Mark C., PhD

“…Objective To assess health care utilization during the first year of life among early term-born infants. Study design We assessed health care utilization of 22…”
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Predictors of Bowel Function in Long-term Rectal Cancer Survivors with Anastomosis by Alavi, Mubarika, Wendel, Christopher S., Krouse, Robert S., Temple, Larissa, Hornbrook, Mark C., Bulkley, Joanna E., McMullen, Carmit K., Grant, Marcia, Herrinton, Lisa J.

“…Background Bowel function in long-term rectal cancer survivors with anastomosis has not been characterized adequately. We hypothesized that bowel function is…”
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Diet and Behavior Modifications by Long-term Rectal Cancer Survivors to Manage Bowel Dysfunction-Associated Symptoms by Sun, Virginia, Wendel, Christopher S., Demark-Wahnefried, Wendy, Grant, Marcia, McMullen, Carmit K., Bulkley, Joanna E., Herrinton, Lisa J., Hornbrook, Mark C., Krouse, Robert S.

“…Background: Rectal cancer (RC) survivors experience significant bowel function issues after treatment. We aimed to describe self-reported dietary and…”
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