Search Results - "Buckle, Niamh"
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The economic impact of living with a rare disease for children and their families: a scoping review protocol
Published in HRB open research (2023)“…Rare diseases are an often chronic, progressive and life-limiting group of conditions affecting more than 30 million people in Europe. These diseases are…”
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A qualitative exploration of children's lives with rare diseases
Published in Child : care, health & development (01-07-2024)“…Background Rare diseases encompass a diverse group of debilitating and sometimes life‐threatening conditions that affect a small percentage of the population,…”
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The economic impact of living with a rare disease for children and their families: a scoping review protocol
Published in HRB open research (01-01-2023)“…Background Rare diseases are an often chronic, progressive and life-limiting group of conditions affecting more than 30 million people in Europe. These…”
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Journal Article -
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The impact of music on health and wellbeing of children and young people with rare diseases in healthcare settings: A scoping review
Published in British journal of music therapy (London, England : 1995) (01-11-2024)“…Interest in the applications of music in health, social care and community settings are growing worldwide. Rare diseases are a major challenge for public…”
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The use of art as a creative research method to understand psychosocial care needs for children with rare diseases
Published in Therapeutic advances in rare disease (01-01-2024)“…Plain language summary Art can be used as a creative method to understand the psychological and social care needs for children with rare diseases Living with…”
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