Search Results - "Buckle, Niamh"

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  1. 1

    The economic impact of living with a rare disease for children and their families: a scoping review protocol by Buckle, Niamh, Doyle, Orla, Kodate, Naonori, Somanadhan, Suja

    Published in HRB open research (2023)
    “…Rare diseases are an often chronic, progressive and life-limiting group of conditions affecting more than 30 million people in Europe. These diseases are…”
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    Journal Article
  2. 2

    A qualitative exploration of children's lives with rare diseases by Buckle, Niamh, Rogers, Yvonne, O'Toole, Doris, McNulty, Sandra, Kroll, Thilo, Gibbs, Lisa, Somanadhan, Suja

    Published in Child : care, health & development (01-07-2024)
    “…Background Rare diseases encompass a diverse group of debilitating and sometimes life‐threatening conditions that affect a small percentage of the population,…”
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    Journal Article
  3. 3

    The economic impact of living with a rare disease for children and their families: a scoping review protocol by Buckle, Niamh, Doyle, Orla, Kodate, Naonori, Somanadhan, Suja

    Published in HRB open research (01-01-2023)
    “…Background Rare diseases are an often chronic, progressive and life-limiting group of conditions affecting more than 30 million people in Europe. These…”
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    Journal Article
  4. 4

    The impact of music on health and wellbeing of children and young people with rare diseases in healthcare settings: A scoping review by Sinnott, Shannon, Buckle, Niamh, Sweeney, Alison, Karpavičiūtė, Simona, O’Neill, Amy, Kroll, Thilo, Somanadhan, Suja

    “…Interest in the applications of music in health, social care and community settings are growing worldwide. Rare diseases are a major challenge for public…”
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    Journal Article
  5. 5

    The use of art as a creative research method to understand psychosocial care needs for children with rare diseases by Buckle, Niamh, O’Neill, Amy, Sweeney, Alison, McNulty, Sandra, Bracken, Shirley, Awan, Atif, Sinnott, Shannon, Gibbs, Lisa, Larkin, Philip, Kroll, Thilo, Somanadhan, Suja

    Published in Therapeutic advances in rare disease (01-01-2024)
    “…Plain language summary Art can be used as a creative method to understand the psychological and social care needs for children with rare diseases Living with…”
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    Journal Article