Search Results - "Buchanan, Cindy L"

Parental experience and understanding of parent-provider discussions of treatment for infants with ureteropelvic junction obstruction by Buchanan, Cindy L., Morris, Megan A., Matlock, Daniel, Kempe, Allison, Vemulakonda, Vijaya M.

“…The purpose of the current study was to understand what families identify as necessary information to guide decision-making in the treatment of their child…”
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Adherence in pediatric kidney transplant recipients: solutions for the system by Steinberg, Elizabeth A., Moss, Mary, Buchanan, Cindy L., Goebel, Jens

“…Non-adherence remains a significant problem among pediatric (and adult) renal transplant recipients. Non-adherence among solid organ transplant recipients…”
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Trajectories of illness uncertainty among parents of children with atypical genital appearance due to differences of sex development by Traino, Katherine A, Ciciolla, Lucia M, Perez, Megan N, Chaney, John M, Welch, Ginger, Baskin, Laurence S, Buchanan, Cindy L, Chan, Yee-Ming, Cheng, Earl Y, Coplen, Douglas E, Wisniewski, Amy B, Mullins, Larry L

“…The present study aimed to identify distinct trajectories of parental illness uncertainty among parents of children born with atypical genital appearance due…”
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Exploratory factor analysis of the Illness Intrusiveness Rating Scale for parents of children with atypical genital appearance due to differences of sex development (DSD) by DeLone, Alexandra M, Fisher, Rachel S, Traino, Katherine A, Basile, Nathan L, Buchanan, Cindy L, Cheng, Earl Y, Poppas, Dix P, Baraldi, Amanda N, Wisniewski, Amy B, Mullins, Larry L

“…Illness intrusiveness refers to the subjective cognitive appraisal of a chronic health condition interfering in daily, valued activities and may be highly…”
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Understanding disparities and barriers associated with pediatric transplant evaluation and time to listing: Moving toward a more comprehensive picture by Steinberg Christofferson, Elizabeth, Ruzicka, Elizabeth B., Bolt, Matthew, Lyons, Emma, Wachs, Michael, Buchanan, Cindy L., Schmiege, Sarah J., Monnin, Kara

“…Background Delayed time to listing (TTL) for pediatric transplant patients is associated with increased risks of mortality and morbidity. The full range of…”
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Parental Uncertainty Scale Factor Structure in Pediatric DSD With Ambiguous Genitalia by Basile, Nathan L, Dattilo, Taylor M, DeLone, Alexandra M, Kraft, Jacob D, Edwards, Clayton S, Buchanan, Cindy L, Cheng, Earl Y, Poppas, Dix P, Wisniewski, Amy B, Mullins, Larry L

“…Abstract Objective Illness uncertainty is a salient experience for caregivers of children with disorders/differences of sex development (DSD) presenting with…”
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Behavioral Health Diagnoses in Youth with Differences of Sex Development or Congenital Adrenal Hyperplasia Compared with Controls: A PEDSnet Study by Sewell, Rachel, Buchanan, Cindy L., Davis, Shanlee, Christakis, Dimitri A., Dempsey, Amanda, Furniss, Anna, Kazak, Anne E., Kerlek, Anna J., Magnusen, Brianna, Pajor, Nathan M., Pyle, Laura, Pyle, Louise C., Razzaghi, Hanieh, Schwartz, Beth I., Vogiatzi, Maria G., Nokoff, Natalie J.

“…To evaluate the odds of a behavioral health diagnosis among youth with differences of sex development (DSD) or congenital adrenal hyperplasia (CAH) compared…”
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Understanding Substance use Policies and Associated Ethical Concerns: A survey of Pediatric Transplant Centers by Monnin, Kara, Lofton, Amie M., Naclerio, Catherine, Buchanan, Cindy L., Campbell, Kristen, Tenenbaum, Rachel B., Steinberg Christofferson, Elizabeth

“…Psychosocial risk factors, such as substance use, have been linked to poor post‐transplant outcomes for solid organ transplant patients, including poor…”
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Unexpected challenges faced by caregivers of children with neurogenic bladder: A qualitative study by Flewelling, Kassie D., Wengryn, Derek M., Buchanan, Cindy L., Beltran, Gemma P., Vemulakonda, Vijaya M., Hecht, Sarah L.

“…Management of the neurogenic bladder is variable, complex, and often requires a demanding bladder care regimen which may present caregiver burdens that are…”
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Adverse Birth Experiences and Parent Adjustment Associated With Atypical Genital Appearance Due to Differences of Sex Development by Traino, Katherine A, Fisher, Rachel S, Basile, Nathan L, Dattilo, Taylor M, Baskin, Laurence S, Buchanan, Cindy L, Chan, Yee-Ming, Cheng, Earl Y, Coplen, Douglas E, Kolon, Thomas F, Lakshmanan, Yegappan, Palmer, Blake W, Mullins, Larry L, Ciciolla, Lucia M, Wisniewski, Amy B

“…Abstract Objective Differences/disorders of sex development (DSDs) are rare, congenital conditions involving discordance between chromosomes, gonads, and…”
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Decisional regret about surgical and non-surgical issues after genitoplasty among caregivers of female infants with CAH by Fisher, Rachel S., Espeleta, Hannah C., Baskin, Laurence S., Buchanan, Cindy L., Chan, Yee-Ming, Cheng, Earl Y., Coplen, Douglas E., Diamond, David A., Nokoff, Natalie J., Palmer, Blake W., Poppas, Dix P., Scott Reyes, Kristy J., Tishelman, Amy, Wolfe-Christensen, Cortney, Mullins, Larry L., Wisniewski, Amy B.

“…Caregivers of female infants with congenital adrenal hyperplasia (CAH) often confront complex medical decision-making (e.g., early feminizing genitoplasty)…”
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Surgical experiences in adolescents and young adults with differences of sex development: A qualitative examination by Flewelling, Kassie D., De Jesus Ayala, Stephanie, Chan, Yee-Ming, Chen, Diane, Daswani, Saakshi, Hansen–Moore, Jennifer, Rama Jayanthi, V., Kapa, Hillary M., Nahata, Leena, Papadakis, Jaclyn L., Pratt, Keeley, Rausch, Joseph R., Umbaugh, Hailey, Vemulakonda, Vijaya, Crerand, Canice E., Tishelman, Amy C., Buchanan, Cindy L.

“…Surgical intervention in youth with differences of sex development (DSD) is a controversial topic. Historically, evidence suggests that genital surgery in DSD…”
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Transition to adult services among behaviorally infected adolescents with HIV--a qualitative study by Valenzuela, Jessica M, Buchanan, Cindy L, Radcliffe, Jerilynn, Ambrose, Christine, Hawkins, Linda A, Tanney, Mary, Rudy, Bret J

“…The present study aimed to describe the experiences of youth with behaviorally acquired HIV who transitioned to adult care, to identify difficulties…”
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Fertility Discussions: Perspectives of Adolescents and Young Adults With Differences of Sex Development by Papadakis, Jaclyn L., Poquiz, Jonathan L., Buchanan, Cindy L., Chan, Yee-Ming, Crerand, Canice E., Hansen-Moore, Jennifer, Kapa, Hillary M., Nahata, Leena, Pratt, Keeley J., Tishelman, Amy C., Chen, Diane

“…Objective: Fertility-related health care and decision-making needs for youth with differences of sex development (DSD) are complex and vary by condition and…”
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The Application of Positive Psychology and Self-Determination to Research in Intellectual Disability: A Content Analysis of 30 Years of Literature by Shogren, Karrie A., Wehmeyer, Michael L., Buchanan, Cindy L., Lopez, Shane J.

“…In recent decades, there have been shifts in the conceptualization of intellectual disability and increased attention has been directed toward the importance…”
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Behavioral Health Diagnoses in Youth With Difference of Sex Development or Congenital Adrenal Hyperplasia Compared With Controls: A PEDSnet Study by Sewell, Rachel, Buchanan, Cindy L, Davis, Shanlee, Christakis, Dimitri A, Dempsey, Amanda, Furniss, Anna, Kazak, Anne E, Kerlek, Anna J, Magnusen, Brianna, Pajor, Nathan M, Pyle, Laura, Pyle, Louise C, Razzaghi, Hanieh, Schwartz, Beth I, Vogiatzi, Maria G, Nokoff, Natalie J

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Decisional Regret Among Caregivers of Infants with Differences of Sex Development Reared as Male by Fisher, Rachel S., Datillo, Taylor M., Baskin, Laurence S., Cheng, Earl Y., Kolon, Thomas, Nokoff, Natalie J., Poppas, Dix P., Reyes, Kristy J., Mullins, Larry L., Wisniewski, Amy B.

“…Differences of sex development (DSD) are congenital conditions in which individuals are discordant in their chromosomal, phenotypic, and/or gonadal sex…”
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Transition to Adult Services among Behaviorally Infected Adolescents with HIV—A Qualitative Study : Health Care Transition by VALENZUELA, Jessica M, BUCHANAN, Cindy L, RADCLIFFE, Jerilynn, AMBROSE, Christine, HAWKINS, Linda A, TANNEY, Mary, RUDY, Bret J

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Making hope happen for students receiving special education services by Buchanan, Cindy L

“…In positive psychology and special education, research and interventions focused on accentuating positive characteristics for students with disabilities is…”
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