Search Results - "Brelsford, Kathleen"

Direct-to-consumer genetic testing: Prospective users' attitudes toward information about ancestry and biological relationships by Hazel, James W, Hammack-Aviran, Catherine, Brelsford, Kathleen M, Malin, Bradley A, Beskow, Laura M, Clayton, Ellen Wright

“…Direct-to-consumer genetic testing is marketed as a tool to uncover ancestry and kin. Recent studies of actual and potential users have demonstrated that…”
Get full text

Thought leader perspectives on benefits and harms in precision medicine research by Beskow, Laura M, Hammack, Catherine M, Brelsford, Kathleen M

“…Precision medicine research is underway to identify targeted approaches to improving health and preventing disease. However, such endeavors raise significant…”
Get full text

Surgeon Perspectives on Benefits and Downsides of Overlapping Surgery: In-depth, Qualitative Interviews by Perez, Andrew W., Brelsford, Kathleen M., Diehl, Carolyn J., Langerman, Alexander J.

“…OBJECTIVE:The aim of the study was to characterize surgeon perspectives regarding the benefits and downsides of conducting overlapping surgery…”
Get full text

Patient perspectives on use of electronic health records for research recruitment by Beskow, Laura M, Brelsford, Kathleen M, Hammack, Catherine M

“…EHR phenotyping offers the ability to rapidly assemble a precisely defined cohort of patients prescreened for eligibility to participate in health-related…”
Get full text

Patient values regarding overlapping surgery: Identification of distinct patient subgroups by Langerman, Alexander, Arambula, Alexandra, Bonnet, Kemberlee, Schlundt, David G., Brelsford, Kathleen M.

“…Objectives/Hypothesis To explore patient values associated with their comfort level with surgical trainees and attending surgeon absence from the operating…”
Get full text

Research use of electronic health records: patients' perspectives on contact by researchers by Brelsford, Kathleen M, Spratt, Susan E, Beskow, Laura M

“…The use of electronic health records (EHRs) for research has the potential to improve the diagnosis and treatment of disease, yet contact with patients based…”
Get full text

Trust as a Predictor of Patient Perceptions Regarding Overlapping Surgery and Trainee Independence by Langerman, Alexander, Brelsford, Kathleen M., Diehl, Carolyn J., Harris, Coleman R., Stewart, Thomas G.

“…Objectives To examine opinions on trainee independence and attending presence among a cross‐section of the general population and explore how perceptions of…”
Get full text

Developing model biobanking consent language: what matters to prospective participants? by Beskow, Laura M, Hammack-Aviran, Catherine M, Brelsford, Kathleen M

“…Efforts to improve informed consent have led to calls for providing information a reasonable person would want to have, in a way that facilitates understanding…”
Get full text

Mapping parents' journey following prenatal diagnosis of CHD: a qualitative study by Harris, Kelly W, Hammack-Aviran, Catherine M, Brelsford, Kathleen M, Kavanaugh-McHugh, Ann, Clayton, Ellen Wright

“…To better understand parents' accounts of their prenatal and postnatal experience after prenatal diagnosis of CHD - particularly emotional processing and…”
Get more information

Uncertainty of Prenatally Diagnosed Congenital Heart Disease: A Qualitative Study by Harris, Kelly W, Brelsford, Kathleen M, Kavanaugh-McHugh, Ann, Clayton, Ellen Wright

“…Parents who receive a prenatal diagnosis of congenital heart disease may experience more short- and long-term stress than those who receive a postnatal…”
Get full text

Patient Perceptions of Resident Involvement in Surgery: A Qualitative Study Using Surgical Video by Naguib, Mark M., Day, R. Thomas, Hammack-Aviran, Catherine M., Brelsford, Kathleen M., Langerman, Alexander

“…To improve patient-centered perioperative informed consent, this study used real surgical footage to identify key topics which might be discussed with patients…”
Get full text

Thought Leader Perspectives on Participant Protections in Precision Medicine Research by Hammack, Catherine M., Brelsford, Kathleen M., Beskow, Laura M.

“…Precision medicine research is rapidly taking a lead role in the pursuit of new ways to improve health and prevent disease, but also presents new challenges…”
Get full text

Ethical Considerations in the Conduct of Unregulated mHealth Research: Expert Perspectives by Hammack-Aviran, Catherine M., Brelsford, Kathleen M., Beskow, Laura M.

“…To assist in resolving ethical questions surrounding unregulated mHealth research, we conducted in-depth qualitative interviews with experts from four key…”
Get full text

Mapping Parents’ Journey Following Prenatal Diagnosis of Congenital Heart Disease (T315C) by Harris, Kelly W., Hammack-Aviran, Catherine M., Brelsford, Kathleen M., Kavanaugh-McHugh, Ann, Clayton, Ellen W.

“…Objectives 1. Describe Results from this analysis on how parents process and cope after receiving a prenatal diagnosis of congenital heart disease. 2…”
Get full text

Protecting Participants in Genomic Research: Understanding the “Web of Protections” Afforded by Federal and State Law by Wolf, Leslie E., Hammack, Catherine M., Brown, Erin Fuse, Brelsford, Kathleen M., Beskow, Laura M.

“…Researchers now commonly collect biospecimens for genomic analysis together with information from mobile devices and electronic health records. This rich…”
Get full text

Comparison of Approaches for Notification and Authorization in Pragmatic Clinical Research Evaluating Commonly Used Medical Practices by Weinfurt, Kevin P., Bollinger, Juli M., Brelsford, Kathleen M., Bresciani, Martina, Lampron, Zachary, Lin, Li, Topazian, Rachel J., Sugarman, Jeremy

“…For pragmatic clinical research comparing commonly used treatments, questions exist about if and how to notify participants about it and secure their…”
Get full text

Unregulated Health Research Using Mobile Devices: Ethical Considerations and Policy Recommendations by Rothstein, Mark A., Wilbanks, John T., Beskow, Laura M., Brelsford, Kathleen M., Brothers, Kyle B., Doerr, Megan, Evans, Barbara J., Hammack-Aviran, Catherine M., McGowan, Michelle L., Tovino, Stacey A.

“…Mobile devices with health apps, direct-to-consumer genetic testing, crowd-sourced information, and other data sources have enabled research by new classes of…”
Get full text

Informed Consent in Translational Genomics: Insufficient Without Trustworthy Governance by Burke, Wylie, Beskow, Laura M., Trinidad, Susan Brown, Fullerton, Stephanie M., Brelsford, Kathleen

“…Neither the range of potential results from genomic research that might be returned to participants nor future uses of stored data and biospecimens can be…”
Get full text

Culture and Context: Buffering the Relationship Between Stressful Life Events and Risky Behaviors in American Indian Youth by Baldwin, Julie A., Brown, Betty G., Wayment, Heidi A., Nez, Ramona Antone, Brelsford, Kathleen M.

“…The Sacred Mountain Youth Project was conducted to investigate risk and protective factors related to alcohol and drug use among American Indian youth…”
Get full text

Expert Perspectives on Oversight for Unregulated mHealth Research: Empirical Data and Commentary by Beskow, Laura M., Hammack-Aviran, Catherine M., Brelsford, Kathleen M., O'Rourke, P. Pearl

“…In qualitative interviews with a diverse group of experts, the vast majority believed unregulated researchers should seek out independent oversight. Reasons…”
Get full text