Cardiac arrest as a reportable condition: a cohort study of the first 6 years of the Norwegian out-of-hospital cardiac arrest registry

Cardiac arrest as a reportable condition: a cohort study of the first 6 years of the Norwegian out-of-hospital cardiac arrest registry

ObjectivesThe Norwegian Cardiac Arrest Registry (NorCAR) was established in 2013 when cardiac arrest became a mandatory reportable condition. The aim of this cohort study is to describe how the world’s first mandatory, population-based cardiac arrest registry evolved during its first 6 years.Setting...

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Bibliographic Details
Published in:BMJ open Vol. 10; no. 7; p. e038133
Main Authors: Tjelmeland, Ingvild Beathe Myrhaugen, Alm-Kruse, Kristin, Andersson, Lars-Jøran, Bratland, Ståle, Hafstad, Arne-Ketil, Haug, Bjørn, Langørgen, Jørund, Larsen, Alf Inge, Lindner, Thomas Werner, Nilsen, Jan Erik, Olasveengen, Theresa M, Soreide, Eldar, Skogvoll, Eirik, Kramer-Johansen, Jo
Format: Journal Article
Language:English
Published: England BMJ Publishing Group LTD 08-07-2020
BMJ Publishing Group
Series:Original research
Subjects:
Ambulance services
Cardiac arrest
Cardiopulmonary Resuscitation
Cohort analysis
Cohort Studies
CPR
Data integrity
Datasets
Emergency medical care
Emergency Medical Services
Emergency services
Epidemiology
Heart attacks
Hospitals
Humans
Norway - epidemiology
Out-of-Hospital Cardiac Arrest - epidemiology
Out-of-Hospital Cardiac Arrest - therapy
Patients
Quality
Registration
Registries
Trends
Norway
epidemiology
registry
cardiac arrest
cardiology
reporting
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Summary:ObjectivesThe Norwegian Cardiac Arrest Registry (NorCAR) was established in 2013 when cardiac arrest became a mandatory reportable condition. The aim of this cohort study is to describe how the world’s first mandatory, population-based cardiac arrest registry evolved during its first 6 years.SettingNorway has a total population of 5.3 million inhabitants with a population density that varies considerably. All residents are assigned a unique identifier number, giving nationally approved registries access to information about all births and deaths in the country. Data in the registry are entered by data processors; public employees with close links to the emergency medical services. All data processors undergo a standardised training and meet for yearly retraining and updates.ParticipantsAll events of cardiac arrest where bystanders or healthcare professionals have started cardiopulmonary resuscitation or performed defibrillation are included into the NorCAR.Primary and secondary outcome measuresSince the establishment of the registry, the number of reporting health trusts, the number of reported events and the corresponding population at risk were followed year by year. Outcome is measured as changes in inclusion rate, incidence per 100 000 inhabitants and survival to 30 days after cardiac arrest.ResultsIn total, 14 849 cases were registered over 6 years, between 2013 and 2018. The number of health trusts reporting rose steadily from 2013. Within 3 years, all trusts reported to the registry with an increasing number of events reported; going from 1101 to 3400 per year. The prevalence of bystander cardiopulmonary resuscitation increased slightly, but the population incidence of survival did not change.ConclusionDeclaring cardiac arrest as a reportable condition and close follow-up of all reporting areas is essential when building a national registry.
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ISSN:2044-6055
2044-6055
DOI:10.1136/bmjopen-2020-038133