Honnête, ouvert, prêt (HOP) ! Acceptabilité et faisabilité de la version française d’un programme d’auto-déstigmatisation de la maladie psychique
Le but de cette étude pilote était de tester la faisabilité et l’acceptabilité de la version française d’un programme animé par des pairs sur le dévoilement à autrui d’informations sur sa maladie pour des personnes atteintes de troubles psychiatriques. Honnête, ouvert, prêt (HOP) est un programme co...
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| Published in: | Annales médico psychologiques Vol. 179; no. 4; pp. 317 - 322 |
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| Main Authors: | , , , , , , , |
| Format: | Journal Article |
| Language: | French |
| Published: |
Elsevier Masson SAS
01-04-2021
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| Subjects: | |
| Online Access: | Get full text |
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| Summary: | Le but de cette étude pilote était de tester la faisabilité et l’acceptabilité de la version française d’un programme animé par des pairs sur le dévoilement à autrui d’informations sur sa maladie pour des personnes atteintes de troubles psychiatriques.
Honnête, ouvert, prêt (HOP) est un programme court qui invite les participants à échanger sur la problématique du dévoilement de la maladie psychique. Trente et une personnes souffrant de troubles psychiatriques ont été recrutées dans trois institutions psychosociales pour tester ce programme.
Les résultats montrent que le programme est faisable et acceptable pour les participants. La participation aux sessions pourrait conduire à une réduction de l’auto-stigmatisation.
Le programme HOP offre une opportunité aux personnes atteintes de troubles psychiques d’échanger et de réfléchir sur le dilemme du dévoilement de la maladie psychique.
This pilot study aims to assess the feasibility and acceptability of a short program about disclosure of mental illness for people with psychiatric disorders.
The participants with a diagnosis of a severe psychiatric disorder were recruited in three psychosocial institutions in French-speaking Switzerland to attend 4 one-hour group sessions of the program Honest, Open, Proud. The sessions were led by a peer practitioner and a psychiatric nurse, using the program guide and the exercise manual shared with the participants. These documents were developed by the team of Patrick Corrigan and are available online. Session 1 invites the participants to consider the advantages and disadvantages of disclosing a mental illness. The costs and benefits are also put into perspective according to different contexts and the potential short- and long-term consequences. Session 2 presents different ways to disclose, from social avoidance to openly spreading one's experience. Session 3 allows participants to learn how to tell their own story. One month after session 3, participants attend a recall session to review their intentions to disclose or not after attending the program and if they have done so, talk about this experience. Self-stigma was measured with the Internalized Stigma of Mental Illness scale, comprising five dimensions; alienation, stereotype adherence, perceived discrimination, social withdrawal and resistance to stigmatization. Acceptability of the program for participants was measured by a 11-item self-reported questionnaire, open questions, attendance rate and drop out. Feasibility was assessed through its operational (training, accessibility, human resources), economics and legal (translation rights ethical considerations) dimensions.
The results are based on data from a sample of 31 participants, aged 43 on average (SD 11.85) with a disease duration of 12.3 years (SD 8.77). The participation rate for HOP sessions was at 93.5%. Most of participants (23/29) attended all sessions, five participants attended three sessions and two participants attended two sessions. Most of participants (84%) appreciated the facilitation by a mental health peer practitioner and having the opportunity to talk about something they could not address elsewhere (73%). For 92% of them, elements of HOP could be applied in their daily lives and all are unanimous when recommending HOP to other people with psychiatric disorders. The HOP program is designed to be facilitated by peer practitioners, yet in Switzerland, their number and integration into care settings is still limited. The program has been feasible with a peer-practitioner only, in three institutions. The program is available freely for peer-practitioners and without cost for the participants and was adapted to the cultural context and was led in four sessions. It was accepted by the ethical committee for human being research and the original authors gave the right to translate it into French. Participants ask for a longer intervention with more practical exercises. In pretest, the average self-stigmatization score for the sample was 2.10 (SD 0.40), with a theoretical maximum of 4. The sub-dimension alienation shows an average score (2.32, SD 0.58) higher than the others. sub-dimensions, and adherence to the stereotype the lowest average score (1.87, SD 0.38). In post-test, the total self-stigma score decreased by 0.16, an average of 1.94 (SD 0.41). All the means of the sub-dimension scores also decreased, most importantly for the alienation (0.267). Internalized Stigma of Mental Illness scale total score was significantly improved at post-test (t(22)=2.08, P=0.049).
This pilot study shows that the HOP program is acceptable and feasible for people with mental health disorders and achievable in psychosocial institutions. The results at the self-stigma scale show a reduction of self-stigma total score. |
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| ISSN: | 0003-4487 1769-6631 |
| DOI: | 10.1016/j.amp.2020.08.007 |