Search Results - "Boss, Renee D"
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Models for structuring a clinical initiative to enhance palliative care in the intensive care unit: A report from the IPAL-ICU Project (Improving Palliative Care in the ICU)
Published in Critical care medicine (01-09-2010)“…OBJECTIVE:To describe models used in successful clinical initiatives to improve the quality of palliative care in critical care settings. DATA SOURCES:We…”
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Neonatologist training in communication and palliative care
Published in Seminars in perinatology (01-03-2017)“…ABSTRACT Neonatologists receive highly varied and largely inadequate training to acquire and maintain communication and palliative care skills. Neonatology…”
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Teaching antenatal counseling skills to neonatal providers
Published in Seminars in perinatology (01-02-2014)“…Abstract Counseling a family confronted with the birth of a periviable neonate is one of the most difficult tasks that a neonatologist must perform. The…”
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Trisomy 18 and Complex Congenital Heart Disease: Seeking the Threshold Benefit
Published in Pediatrics (Evanston) (01-07-2013)“…A prenatal diagnosis of ductal-dependent, complex congenital heart disease was made in a fetus with trisomy 18. The parents requested that the genetic…”
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“I don’t know what I was expecting”: Home visits by neonatology fellows for infants discharged from the NICU
Published in Birth (Berkeley, Calif.) (01-12-2017)“…Background When families transition from the neonatal intensive care unit (NICU) to the home, they become responsible for their infant's daily medical needs…”
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Palliative care for NICU survivors with chronic critical illness
Published in Seminars in fetal & neonatal medicine (01-08-2023)“…The sickest of NICU survivors develop chronic critical illness (CCI). Most infants with CCI will leave the NICU using chronic medical technology and will…”
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Home values and experiences navigation track (HomeVENT): Supporting decisions about pediatric home ventilation
Published in PEC innovation (01-12-2023)“…To pilot feasibility and acceptability of HomeVENT, a systematic approach to family-clinician decision-making about pediatric home ventilation. Parents and…”
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Video tools in pediatric goals of care communication: A systematic review
Published in PEC innovation (01-12-2022)“…•Goals of Care resources are primarily in written format and for adult patients.•Video tools can support families of pediatric patients facing prognostic…”
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Building Relationships in the Neonatal Intensive Care Unit to Improve Infant Outcomes
Published in Patient education and counseling (01-07-2021)Get full text
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Long-Term Care for Children With Medical Complexity: A Call for Data
Published in Pediatrics (Evanston) (01-06-2022)Get full text
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Observation of Child Experience During Discontinuing of Medically Provided Nutrition and Hydration
Published in Journal of pain and symptom management (01-03-2023)“…Ethical and professional guidelines support withholding/discontinuing medically provided nutrition and hydration (MPNH) for children in specific scenarios yet…”
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Social Disparities and Death Among Children With Complex Chronic Conditions
Published in Pediatrics (Evanston) (01-05-2019)Get full text
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Ethical considerations for cardiac surgical interventions in children with trisomy 13 and trisomy 18
Published in American journal of medical genetics. Part C, Seminars in medical genetics (01-03-2020)“…Medical and surgical approaches to children with trisomy 13 and 18 are evolving, and an increasing number of patients are being considered for simple and…”
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Palliative Care for Pediatric Urology
Published in Journal of pain and symptom management (01-07-2024)“…Palliative care in the field of urology has largely been limited to adult oncologic conditions. Although there is a plethora of established literature…”
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Enhancing Pediatric Palliative Care for Latino Children and Their Families: A Review of the Literature and Recommendations for Research and Practice in the United States
Published in Children (Basel) (22-12-2017)“…As the demand for pediatric palliative care (PC) increases, data suggest that Latino children are less likely to receive services than non-Latino children…”
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Values-based shared decision-making in the antenatal period
Published in Seminars in fetal & neonatal medicine (01-02-2018)“…Despite advances in life-saving technology for critically ill neonates, challenges continue to arise for infants delivered with extreme prematurity, congenital…”
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Establishing Goals of Care in Serious and Complex Pediatric Illness
Published in The Pediatric clinics of North America (01-02-2024)“…An increasing number of children are living for months and years with serious/complex illness characterized by long-term prognostic uncertainty, intensive…”
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Guidance for Pediatric End-of-Life Care
Published in Pediatrics (Evanston) (01-05-2022)“…The final hours, days, and weeks in the life of a child or adolescent with serious illness are stressful for families, pediatricians, and other pediatric…”
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Reflective practice: Guarded
Published in Patient education and counseling (01-01-2018)“…•A neonatologist must counsel young parents of a sick infant in Baltimore, Maryland.•The National Guard is posted outside the hospital during civil unrest.•The…”
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Operationalizing neonatal palliative care
Published in Seminars in fetal & neonatal medicine (01-08-2023)Get full text
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