Search Results - "Boele, Florien W."

Brain Re-Irradiation Or Chemotherapy: a phase II randomised trial of re-irradiation and chemotherapy in patients with recurrent glioblastoma (BRIOChe) – protocol for a multi-centre open-label randomised trial by Hudson, Eleanor M, Noutch, Samantha, Webster, Joanne, Brown, Sarah R, Boele, Florien W, Al-Salihi, Omar, Baines, Helen, Bulbeck, Helen, Currie, Stuart, Fernandez, Sharon, Hughes, Jane, Lilley, John, Smith, Alexandra, Parbutt, Catherine, Slevin, Finbar, Short, Susan, Sebag-Montefiore, David, Murray, Louise

“…IntroductionGlioblastoma (GBM) is the most common adult primary malignant brain tumour. The condition is incurable and, despite aggressive treatment at first…”
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Interventions to help support caregivers of people with a brain or spinal cord tumour by Boele, Florien W, Rooney, Alasdair G, Bulbeck, Helen, Sherwood, Paula

“…The diagnosis and treatment of a brain or spinal cord tumour can have a huge impact on the lives of patients and their families with family caregiving often…”
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The association between cognitive functioning and health-related quality of life in low-grade glioma patients by Boele, Florien W., Zant, Maaike, Heine, Emma C.E., Aaronson, Neil K., Taphoorn, Martin J.B., Reijneveld, Jaap C., Postma, Tjeerd J., Heimans, Jan J., Klein, Martin

“…Background Glioma patients are not only confronted with the diagnosis and treatment of a brain tumor, but also with changes in cognitive and neurological…”
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Rehabilitation in People Living with Glioblastoma: A Narrative Review of the Literature by Zanotto, Anna, Glover, Rebecca N, Zanotto, Tobia, Boele, Florien W

“…Glioblastoma is the most common primary malignant brain tumor. While preliminary data point to the positive effects of rehabilitation for patients with…”
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Communication in the context of glioblastoma treatment: A qualitative study of what matters most to patients, caregivers and health care professionals by Boele, Florien W, Butler, Sean, Nicklin, Emma, Bulbeck, Helen, Pointon, Lucy, Short, Susan C, Murray, Louise

“…Background: Patients with glioblastoma have a poor prognosis and treatment is palliative in nature from diagnosis. It is therefore critical that the benefits…”
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The experience of interval scans for adults living with primary malignant brain tumors by Boele, Florien W., Rudkin, Sarah E., Absolom, Kate, Latchford, Gary, Short, Susan C., Booth, Thomas C.

“…Purpose People with primary malignant brain tumors (PMBT) undergo anti-tumor treatment and are followed up with MRI interval scans. There are potential burdens…”
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Family caregivers' level of mastery predicts survival of patients with glioblastoma: A preliminary report by Boele, Florien W., Given, Charles W., Given, Barbara A., Donovan, Heidi S., Schulz, Richard, Weimer, Jason M., Drappatz, Jan, Lieberman, Frank S., Sherwood, Paula R.

“…BACKGROUND Glioblastoma multiforme (GBM) is associated with a poor prognosis, and patients rely heavily on family caregivers for physical and emotional…”
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Long-term health-related quality of life and neurocognitive functioning after treatment in skull base meningioma patients by Fisher, Fleur L, Zamanipoor Najafabadi, Amir H, van der Meer, Pim B, Boele, Florien W, Peerdeman, Saskia M, Peul, Wilco C, Taphoorn, Martin J B, Dirven, Linda, van Furth, Wouter R

“…Patients with skull base meningioma (SBM) often require complex surgery around critical neurovascular structures, placing them at high risk of poor…”
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Health-related quality of life in stable, long-term survivors of low-grade glioma by Boele, Florien W, Douw, Linda, Reijneveld, Jaap C, Robben, Rianne, Taphoorn, Martin J B, Aaronson, Neil K, Heimans, Jan J, Klein, Martin

“…Patients with low-grade glioma (LGG) often experience long periods of stable disease, emphasizing the importance of maintaining good health-related quality of…”
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Unmet support needs in teenage and young adult childhood brain tumour survivors and their caregivers: “it’s all the aftermath, and then you’re forgotten about” by Nicklin, Emma, Pointon, Lucy, Glaser, Adam, Sarwar, Naseem, Kwok-Williams, Michelle, Debono, Miguel, Velikova, Galina, Boele, Florien W.

“…Purpose Teenage and young adult (TYA) survivors of childhood brain tumours and their family caregivers can experience many late effects of treatment that can…”
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Internet-based guided self-help for glioma patients with depressive symptoms: a randomized controlled trial by Boele, Florien W., Klein, Martin, Verdonck-de Leeuw, Irma M., Cuijpers, Pim, Heimans, Jan J., Snijders, Tom J., Vos, Maaike, Bosma, Ingeborg, Tijssen, Cees C., Reijneveld, Jaap C.

“…Depressive symptoms are common in glioma patients, and can negatively affect health-related quality of life (HRQOL). We performed a nation-wide randomized…”
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Establishing anchor-based minimally important differences for the EORTC QLQ-C30 in glioma patients by Dirven, Linda, Musoro, Jammbe Z, Coens, Corneel, Reijneveld, Jaap C, Taphoorn, Martin J B, Boele, Florien W, Groenvold, Mogens, van den Bent, Martin J, Stupp, Roger, Velikova, Galina, Cocks, Kim, Sprangers, Mirjam A G, King, Madeleine T, Flechtner, Hans-Henning, Bottomley, Andrew

“…Abstract Background Minimally important differences (MIDs) allow interpretation of the clinical relevance of health-related quality of life (HRQOL) results…”
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Long-term wellbeing and neurocognitive functioning of diffuse low-grade glioma patients and their caregivers: A longitudinal study spanning two decades by Boele, Florien W, den Otter, Patricia W M, Reijneveld, Jaap C, de Witt Hamer, Philip C, van Thuijl, Hinke F, Lorenz, Linda M C, Wesseling, Pieter, Lagerwaard, Frank J, Taphoorn, Martin J B, Kouwenhoven, Mathilde C M, Snijders, Tom J, Douw, Linda, Klein, Martin

“…While patients with diffuse low-grade glioma (LGG) often survive for years, there is a risk of tumor progression which may impact patients' long-term…”
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Long-Term Disease Burden and Survivorship Issues After Surgery and Radiotherapy of Intracranial Meningioma Patients by Zamanipoor Najafabadi, Amir H, van der Meer, Pim B, Boele, Florien W, Taphoorn, Martin J B, Klein, Martin, Peerdeman, Saskia M, van Furth, Wouter R, Dirven, Linda

“…Abstract BACKGROUND Many intracranial meningioma patients have an impaired health-related quality of life (HRQoL) and neurocognitive functioning up to 4 yr…”
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Patient and caregiver return to work after a primary brain tumor by Nicklin, Emma, Phang, Isaac, Short, Susan C, Hoogendoorn, Petra, Boele, Florien W

“…Abstract Background Studies focusing on the return to work (RTW) experiences of patients with a brain tumor (BT) are scarce. We aimed to explore, in-depth, the…”
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Healthcare utilization and productivity loss in glioma patients and family caregivers: the impact of treatable psychological symptoms by Boele, Florien W., Meads, David, Jansen, Femke, Verdonck-de Leeuw, Irma M., Heimans, Jan J., Reijneveld, Jaap C., Short, Susan C., Klein, Martin

“…Background Gliomas are associated with significant healthcare burden, yet reports of costs are scarce. While many costs are unavoidable there may be treatable…”
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The effects of SmartCare© on neuro-oncology family caregivers’ distress: a randomized controlled trial by Boele, Florien W., Weimer, Jason M., Marsland, Anna L., Armstrong, Terri S., Given, Charles W., Drappatz, Jan, Donovan, Heidi S., Sherwood, Paula R.

“…Purpose Patients with primary malignant brain tumors have high symptom burden and commonly rely on family caregivers for practical and emotional support. This…”
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Determinants and predictors for the long-term disease burden of intracranial meningioma patients by Zamanipoor Najafabadi, Amir H., van der Meer, Pim B., Boele, Florien W., Taphoorn, Martin J. B., Klein, Martin, Peerdeman, Saskia M., van Furth, Wouter R., Dirven, Linda

“…Introduction Meningioma is a heterogeneous disease and patients may suffer from long-term tumor- and treatment-related sequelae. To help identify patients at…”
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Cognitive functioning during long-term tamoxifen treatment in postmenopausal women with breast cancer by Boele, Florien W, Schilder, Christina M.T, de Roode, Mari-Lou, Deijen, Jan Berend, Schagen, Sanne B

“…OBJECTIVEEndocrine therapy is widely used—often for many years—in women with breast cancer. Yet little is known about cognitive functioning after long-term use…”
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Psychiatric symptoms in glioma patients: from diagnosis to management by Boele, Florien W, Rooney, Alasdair G, Grant, Robin, Klein, Martin

“…Patients with primary intrinsic brain tumors can experience neurological, cognitive, and psychiatric symptoms that greatly affect daily life. In this review,…”
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