Primary Care Severe Asthma Registry and Education Project (PCSAR-EDU): Phase 1 – an e-Delphi for registry definitions and indices of clinician behaviour

Primary Care Severe Asthma Registry and Education Project (PCSAR-EDU): Phase 1 – an e-Delphi for registry definitions and indices of clinician behaviour

IntroductionAlthough most asthma is mild to moderate, severe asthma accounts for disproportionate personal and societal costs. Poor co-ordination of care between primary care and specialist settings is recognised as a barrier to achieving optimal outcomes. The Primary Care Severe Asthma Registry and...

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Bibliographic Details
Published in:BMJ open Vol. 12; no. 3; p. e055958
Main Authors: D'Urzo, Katrina A, Tamari, Itamar E, Chapman, Kenneth R, Maleki-Yazdi, M Reza, Greiver, Michelle, Upshur, Ross EG, Biro, Lana, O'Neill, Braden, Moineddin, Rahim, Aliarzadeh, Babak, Kulasegaram, Kulamakan, To, Teresa, D'Urzo, Anthony D
Format: Journal Article
Language:English
Published: England British Medical Journal Publishing Group 24-03-2022
BMJ Publishing Group LTD
BMJ Publishing Group
Series:Protocol
Subjects:
Algorithms
Asthma
Asthma - therapy
Collaboration
Community
Consensus
Decision making
Delphi Technique
Electronic health records
general medicine (see internal medicine)
General practice / Family practice
Humans
Interdisciplinary aspects
Interprofessional education
Medical education
Medical records
Medical referrals
Patients
Practice research
Primary care
Primary Health Care
Registries
respiratory medicine (see thoracic medicine)
primary care
asthma
respiratory medicine (see thoracic medicine)
general medicine (see internal medicine)
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Summary:IntroductionAlthough most asthma is mild to moderate, severe asthma accounts for disproportionate personal and societal costs. Poor co-ordination of care between primary care and specialist settings is recognised as a barrier to achieving optimal outcomes. The Primary Care Severe Asthma Registry and Education (PCSAR-EDU) project aims to address these gaps through the interdisciplinary development and evaluation of both a ‘real-world’ severe asthma registry and an educational programme for primary care providers. This manuscript describes phase 1 of PCSAR-EDU which involves establishing interdisciplinary consensus on criteria for the: (1) definition of severe asthma; (2) generation of a severe asthma registry and (3) definition of an electronic-medical record data-based Clinician Behaviour Index (CBI).Methods and analysisIn phase 1, a modified e-Delphi activity will be conducted. Delphi panellists (n≥13) will be invited to complete a 30 min online survey on three separate occasions (i.e., three separate e-Delphi ‘rounds’) over a 3-month period. Expert opinion will be collected via an open-ended survey (‘Open’ round 1) and 5-point Likert scale and ranking surveys (‘Closed’ round 2 and 3). A fourth and final Delphi round will occur via synchronous meeting, whereby panellists approve a finalised ideal ‘core criteria list’, CBI and corresponding item weighting.Ethics and disseminationEthical approval has been obtained for the activities involved in phase 1 from the University of Toronto’s Human Research Ethics Programme (approval number 39695). Future ethics approvals will depend on information gathered in the proceeding phase; thus, ethical approval for phase 2 and 3 of this study will be sought sequentially. Findings will be disseminated through conference presentations, peer-reviewed publications and knowledge translation tools.
Bibliography:Protocol
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ISSN:2044-6055
2044-6055
DOI:10.1136/bmjopen-2021-055958