Search Results - "Beverung, Lauren M"

Pathways to earned-security: The role of alternative support figures by Saunders, Rachel, Jacobvitz, Deborah, Zaccagnino, Maria, Beverung, Lauren M., Hazen, Nancy

“…This study explored the kinds of relationship experiences associated with earned-security, i.e., the extent to which mothers who report early negative…”
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Clinically meaningful interpretation of pediatric health-related quality of life in sickle cell disease by Beverung, Lauren M, Varni, James W, Panepinto, Julie A

“…Health-related quality of life (HRQL) measures provide information about disease assessment; however, health care providers may be reluctant to use HRQL…”
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Youth Victims of Violence Report Worse Quality of Life Than Youth With Chronic Diseases by Levas, Michael N, Melzer-Lange, Marlene, Tarima, Sergey, Beverung, Lauren M, Panepinto, Julie

“…OBJECTIVESMeasuring health-related quality of life (HRQOL) provides the patientʼs perspective of his/her well-being and offers a unique outcome measure to…”
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Ambulatory quality indicators to prevent infection in sickle cell disease by Beverung, Lauren M., Brousseau, David, Hoffmann, Raymond G., Yan, Ke, Panepinto, Julie A.

“…The purpose of this study was to identify rates of adherence for three outpatient quality indicators noted by Wang et al. (Pediatrics 2011;128:484–493): (1)…”
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Health‐related quality of life in children with sickle cell anemia: Impact of blood transfusion therapy by Beverung, Lauren M., Strouse, John J., Hulbert, Monica L., Neville, Kathleen, Liem, Robert I., Inusa, Baba, Fuh, Beng, King, Allison, Meier, Emily Riehm, Casella, James, DeBaun, Michael R., Panepinto, Julie A.

“…The completion of the Multicenter Silent Infarct Transfusion Trial demonstrated that children with pre‐existing silent cerebral infarct and sickle cell anemia…”
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Women’s Retrospective Experiences of Bereavement: Predicting Unresolved Attachment by Beverung, Lauren M., Jacobvitz, Deborah

“…This study’s goal was to gain a better understanding of why some women become unresolved with regard to loss and others do not. Sixty women were administered…”
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Health-related Quality of Life in Infants With Sickle Cell Disease by Beverung, Lauren M., Bemrich-Stolz, Christina, Torres, Sylvia, Panepinto, Julie A.

“…Using historical cohorts of healthy, acutely ill, and chronically ill infants for comparison, we sought to determine whether infants with sickle cell disease…”
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Integration of Electronic Patient-Reported Outcomes (ePROs) Into Pediatric Clinic Settings Across Hematology/Oncology/Bone Marrow Transplant by Myrvik, Matthew P, Beverung, Lauren M, Panepinto, Julie A, Igler, Eva C, Englebert, Nicole, Bingen, Kristin M

“…Despite the benefits of patient reported outcomes (PROs), the systematic use of PRO assessment in clinical care is rare. The goal of this pilot project was to…”
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Reliability, Validity, and Feasibility of Direct Elicitation of Children’s Preferences for Health States: A Systematic Review by Crump, R. Trafford, Beverung, Lauren M., Lau, Ryan, Sieracki, Rita, Nicholson, Mateo

“…Background. Children’s preferences for health states represent an important perspective when comparing the value of alternative health care interventions…”
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The Impact of an Acute Vaso-Occlusive Crisis on Patient Reported Outcomes: The Magic Study by Panepinto, Julie A., Beverung, Lauren M, Casper, T Charles, Cook, Larry J., Brousseau, David C

“…▪ Acute vaso-occlusive crises (VOC) are the most common complication in sickle cell disease (SCD) and frequently result in hospitalization. The impact of an…”
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Health-Related Quality of Life in Children with Sickle Cell Disease: Impact of Blood Transfusion Therapy by Beverung, Lauren M, Strouse, John J., Hulbert, Monica L., Neville, Kathleen A, Liem, Robert I., Inusa, Baba PD, Fuh, Beng, King, Allison, Meier, Emily R., Casella, James F., DeBaun, Michael R., Panepinto, Julie A.

“…▪ Background: As patient-centered care advances, measurement of health-related quality of life (HRQL) has become increasingly important when assessing the…”
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Reliability, Validity, and Feasibility of Direct Elicitation of Children's Preferences for Health States by Crump, R Trafford, Beverung, Lauren M, Lau, Ryan, Sieracki, Rita, Nicholson, Mateo

“…Children's preferences for health states represent an important perspective when comparing the value of alternative health care interventions related to…”
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PedsQL™ Sickle Cell Disease Module: Feasibility, Reliability and Validity by Panepinto, Julie A., Bendo, Cristiane B., Torres, Sylvia, McCavit, Timothy, Bemrich-Stolz, Christina J., Dinu, Bogdan R., Sherman-Bien, Sandra, Beverung, Lauren M., Varni, James W.

“…Abstract 476 Sickle cell disease (SCD) is an inherited chronic disease characterized by complications such as recurrent painful vaso-occlusive events that can…”
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