Search Results - "Benson, Clark"
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An observational study protocol to capture, validate and characterise lucid episodes in people living with advanced dementia receiving hospice care
Published in BMJ open (16-05-2024)“…IntroductionLucid episodes (LEs) in advanced neurodegenerative disease, characterised by a transient recovery of abilities, have been reported across…”
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Feasibility and Acceptability of a Multifaceted Observational Protocol to Investigate Lucidity in Advanced Dementia
Published in Alzheimer disease and associated disorders (01-04-2024)“…Episodes of lucidity (ELs), characterized by spontaneous, transient recovery of abilities, are reported across neurological conditions, including advanced…”
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The Impact of Episodes of Lucidity on People Living With Dementia and Their Caregivers: A Case Report
Published in Alzheimer disease and associated disorders (01-04-2023)“…People living with dementia (PLWD) may experience the episodes of lucidity (ELs), defined as a sudden return of abilities presumed to have been lost and…”
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Verbal and Nonverbal Expressions of Persons Living With Dementia as Indicators of Person-Centered Caregiving
Published in The Gerontologist (19-10-2022)“…Improved measures capable of capturing the influence of person-centered caregiving by staff in formal care settings on people living with dementia beyond…”
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The Impact of Episodes of Lucidity on People Living With Dementia and Their Caregivers: A Case Report
Published in Alzheimer disease and associated disorders (20-03-2023)“…People living with dementia (PLWD) may experience the episodes of lucidity (ELs), defined as a sudden return of abilities presumed to have been lost and…”
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Impact of episodes of lucidity on people living with dementia and their caregivers: A qualitative study
Published in Alzheimer's & dementia (01-06-2023)“…Background Episodes of lucidity (EL) are generally characterized by a spontaneous and unexpected return of abilities previously believed to be lost in…”
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"It's You": Caregiver and Clinician Perspectives on Lucidity in People Living With Dementia
Published in The Gerontologist (24-01-2023)“…Episodes of lucidity (ELs), or a transient return of abilities believed to be lost in people living with dementia, are a growing area of interest. These events…”
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Preliminary analysis of verbal and nonverbal indicators of episodes of lucidity in advanced AD/ADRD
Published in Alzheimer's & dementia (01-12-2023)“…Background Alzheimer’s disease and related dementias (ADRD) are progressive neurodegenerative diseases believed to cause irreversible cognitive and functional…”
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Tailoring Research Recruitment for Acute Care Settings: Recommendations from People with Dementia and their Caregivers
Published in Alzheimer disease and associated disorders (01-07-2021)“…BACKGROUND:There is a pressing need to increase enrollment and representation in Alzheimer’s disease and related dementia (ADRD) research. Current recruitment…”
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Experiences of in-hospital care among dementia caregivers in the context of high neighborhood-level disadvantage
Published in Journal of the American Geriatrics Society (JAGS) (01-11-2023)“…Persons living with dementia (PLWD) experience high rates of hospitalization and rehospitalization, exposing them to added risk for adverse outcomes including…”
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The Importance of Conceptualizing and Defining Episodes of Lucidity
Published in Journal of gerontological nursing (01-04-2021)Get more information
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Ethical and Methodological Considerations for Evaluating Participant Views on Alzheimer’s and Dementia Research
Published in Journal of empirical research on human research ethics (01-02-2021)“…The urgent need to expand enrollment in Alzheimer’s disease and related dementia (ADRD) research has synergized calls for an empiric science of research…”
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BRAIN HEALTH COMMUNITY REGISTRY: DEVELOPMENT OF A MODEL FOR CONNECTING PARTICIPANTS TO COMMUNITY-BASED SUPPORTS
Published in Innovation in aging (21-12-2023)“…Abstract Growing evidence demonstrates social and economic factors (e.g. socioeconomic status, level of education) contribute to risk for Alzheimer’s disease…”
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Use of Direct In-Person Observation in the Care of Hospitalized Older Adults with Cognitive Impairment: A Systematic Review
Published in Journal of gerontological nursing (01-05-2020)“…Hospitalized older adults with cognitive impairment (CI) due to dementia and/or delirium may require individualized care strategies such as direct observation…”
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FEASIBILITY OF A LONGITUDINAL AUDIOVISUAL OBSERVATION PROTOCOL TO CHARACTERIZE LUCIDITY IN ADVANCED AD/ADRD
Published in Innovation in aging (20-12-2022)“…Abstract Episodes of lucidity (EL) among individuals with advanced dementia, which are predominantly reported near end of life, are clinically and potentially…”
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THE ROLE OF SUPPORT IN THE LIVED EXPERIENCE OF DEMENTIA CAREGIVERS: A SYSTEMATIC REVIEW AND THEMATIC SYNTHESIS
Published in Innovation in aging (20-12-2022)“…Abstract People living with dementia have complex care needs, which are primarily met by unpaid family caregivers. Family caregivers are often underprepared…”
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Characterizing Episodes of Lucidity in Dementia: Observational and Applied Computational Linguistics Approaches
Published in Innovation in aging (17-12-2021)“…Abstract Though episodes of lucidity (EL) in Alzheimer’s disease and related dementia (ADRD), reportedly more common near end of life, have significant…”
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Initial Derivation of Positive Dementia-Related Observational Measures: A Descriptive Ethnography
Published in Innovation in aging (16-12-2020)“…Abstract Person-centered caregiving approaches emphasize efforts to protect and maintain the personhood of people living with dementia (PLWD). The influence on…”
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A Relationship-Oriented Model of Research Participation: The Brain Health Community Registry
Published in Innovation in aging (17-12-2021)“…Abstract Historically excluded and minoritized populations are significantly under-included in health studies of Alzheimer’s disease and related dementias…”
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Ethical and Methodological Considerations Interviewing Dementia Caregivers
Published in Innovation in aging (17-12-2021)“…Abstract Greater inclusion of people living with dementia (PLWD) and their caregivers in research is a global research priority and an expressed priority of…”
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