Search Results - "Beadell, Inez"
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Co-designing interventions to ‘live well’: experiences and perceptions of the Genetic, Undiagnosed and Rare Disease (GUaRD) community
Published in Journal of community genetics (01-06-2023)“…The Genetic, Undiagnosed and Rare Disease community faces a range of hurdles to live their ‘best life’ including physical, social and psychological barriers…”
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Journal Article -
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A decision‐making framework for genomic testing in paediatric nephrology
Published in Journal of paediatrics and child health (01-12-2023)“…Aim Technological advances and increased access have led to genomics expanding beyond the genetics clinic. Consequently, nephrologists can now order genomic…”
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Journal Article -
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An Ethical Decision-Making Framework for Genomic Testing in Pediatric Kidney Disease: PO1990
Published in Journal of the American Society of Nephrology (01-10-2021)Get full text
Journal Article