Concepts of functioning and health important to children with an obstetric brachial plexus injury: a qualitative study using focus groups

Aims The aims of this study were to explore and understand the perspectives of children with an obstetric brachial plexus injury (OBPI) regarding functioning and health, and to create an overview of problems and difficulties that patients encounter in daily life. Method We conducted a focus group st...

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Bibliographic Details
Published in:	Developmental medicine and child neurology Vol. 55; no. 12; pp. 1136 - 1142
Main Authors:	Sarac, Cigdem, Bastiaansen, Evelien, Holst, Menno, Malessy, Martijn J A, Nelissen, Rob G H H, Vliet Vlieland, Thea P M
Format:	Journal Article
Language:	English
Published:	England 01-12-2013
Subjects:	Activities of Daily Living Adolescent Age Factors Brachial Plexus Neuropathies - physiopathology Brachial Plexus Neuropathies - psychology Child Disability Evaluation Disabled Children Female Focus Groups Humans International Classification of Diseases Male Qualitative Research Social Behavior
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Summary:	Aims The aims of this study were to explore and understand the perspectives of children with an obstetric brachial plexus injury (OBPI) regarding functioning and health, and to create an overview of problems and difficulties that patients encounter in daily life. Method We conducted a focus group study with 48 children (25 male, 23 female), aged 8 to 18 years, with an OBPI. Eleven open‐ended questions regarding problems or difficulties in daily life were asked in group sessions with 4 to 7 children within the same age range. These group sessions were tape‐recorded and transcribed verbatim. All problems and difficulties mentioned in each focus group were linked to corresponding categories of the International Classification of Functioning, Disability and Health – Children & Youth Version (ICF‐CY). Results Eight focus groups were conducted. A total of 143 unique ICF‐CY categories were identified. Of these categories, 61 (43%) were related to the ICF‐CY component ‘activities and participation’, 31 (22%) were related to ‘body functions’, 29 (20%) were related to ‘environmental factors’, and 22 (15%) were related to ‘body structures’. Interpretation This study shows that children with OBPI experience difficulties in all areas of functioning, as well as in both environmental and personal factors.
Bibliography:	ObjectType-Article-1 SourceType-Scholarly Journals-1 ObjectType-Feature-2 content type line 23
ISSN:	0012-1622 1469-8749
DOI:	10.1111/dmcn.12270