Search Results - "Bartlett, Susan J"
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Reliability and Validity of Selected PROMIS Measures in People with Rheumatoid Arthritis
Published in PloS one (17-09-2015)“…To evaluate the reliability and validity of 11 PROMIS measures to assess symptoms and impacts identified as important by people with rheumatoid arthritis (RA)…”
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Montreal Accord on Patient-Reported Outcomes Use Series Paper 1: Introduction
Published in Journal of clinical epidemiology (01-09-2017)“…Abstract Background Patient-centered healthcare, where we design and deliver care to address the needs and preferences of patients, represents an important…”
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The Role of Weight Management in the Treatment of Adult Obstructive Sleep Apnea. An Official American Thoracic Society Clinical Practice Guideline
Published in American journal of respiratory and critical care medicine (15-09-2018)“…Overweight/obesity is a common, reversible risk factor for obstructive sleep apnea severity (OSA). The purpose of this guideline is to provide evidence-based…”
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OMERACT Filter 2.1: Elaboration of the Conceptual Framework for Outcome Measurement in Health Intervention Studies
Published in Journal of rheumatology (01-08-2019)“…The Outcome Measures in Rheumatology (OMERACT) Filter 2.0 framework was developed in 2014 to aid core outcome set development by describing the full universe…”
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Emerging Guidelines for Patient Engagement in Research
Published in Value in health (01-03-2017)“…Abstract There is growing recognition that involving patients in the development of new patient-reported outcome measures helps ensure that the outcomes that…”
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Patient-reported outcomes in RA care improve patient communication, decision-making, satisfaction and confidence: qualitative results
Published in Rheumatology (Oxford, England) (01-07-2020)“…Abstract Objective To evaluate the impact of integrating patient-reported outcomes (PROs) into routine clinics, from the perspective of patients with RA,…”
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The impact of tofacitinib on fatigue, sleep, and health-related quality of life in patients with rheumatoid arthritis: a post hoc analysis of data from Phase 3 trials
Published in Arthritis research & therapy (05-04-2022)“…Fatigue, a common symptom of rheumatoid arthritis (RA), is detrimental to health-related quality of life (HRQoL). We evaluated the impact of tofacitinib on…”
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Yoga for Arthritis: A Scoping Review
Published in Rheumatic diseases clinics of North America (01-02-2011)“…This article reviews the existing literature on using yoga for arthritis. It includes peer-reviewed research from clinical trials (published from 1980 to 2010)…”
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The association between depression, lung function, and health-related quality of life among adults with cystic fibrosis
Published in Chest (01-07-2007)“…More than 40% of people born with cystic fibrosis (CF) now reach adulthood. Greater attention is being focused on improving their health-related quality of…”
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Selecting, implementing and evaluating patient-reported outcome measures for routine clinical use in cancer: the Cancer Care Ontario approach
Published in Journal of patient-reported outcomes (26-11-2020)“…Background The use of Patient-Reported Outcome Measures (PROMs) in routine clinical care can help ensure symptoms are identified, acknowledged and addressed…”
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Development and psychometric evaluation of the CanSmart questionnaire to measure chronic disease self-management tasks
Published in BMC Psychology (07-12-2022)“…Psychometrically sound measures of chronic disease self-management tasks are needed to improve identification of patient needs and to tailor self-management…”
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Socioeconomic factors impact the risk of HIV acquisition in the township population of South Africa: A Bayesian analysis
Published in PLOS global public health (2023)“…With a prevalence almost twice as high as the national average, people living in South African townships are particularly impacted by the HIV epidemic. Yet, it…”
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Exploring Sources of Emotional Distress among People Living with Scleroderma: A Focus Group Study
Published in PloS one (23-03-2016)“…Systemic sclerosis, or scleroderma, is a chronic and rare connective tissue disease with negative physical and psychological implications. Sources of emotional…”
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Randomized trial of the effect of drug presentation on asthma outcomes: The American Lung Association Asthma Clinical Research Centers
Published in Journal of allergy and clinical immunology (01-09-2009)“…Background Information that enhances expectations about drug effectiveness improves the response to placebos for pain. Although asthma symptoms often improve…”
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PROMIS Fatigue short forms are reliable and valid in adults with rheumatoid arthritis
Published in Journal of patient-reported outcomes (21-02-2019)“…Background Fatigue is prevalent and impactful in rheumatoid arthritis (RA). There is no standardized measure for its assessment nor data concerning the…”
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Treatment goals for rheumatoid arthritis: patient engagement and goal collection
Published in Journal of comparative effectiveness research (01-05-2023)“…We developed the Patient-Engaged Health Technology Assessment strategy for survey-based goal collection from patients to yield patient-important outcomes…”
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Protocol for the development of a tool to map systemic sclerosis pain sources, patterns, and management experiences: a Scleroderma Patient-centered Intervention Network patient-researcher partnership
Published in BMC rheumatology (21-06-2024)“…Systemic sclerosis (SSc) is a rare, complex autoimmune rheumatic disease with multiple factors that contribute to pain. People with SSc emphasize the effect…”
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Outcome Measures in Rheumatology - Interventions for medication Adherence (OMERACT-Adherence) Core Domain Set for Trials of Interventions for Medication Adherence in Rheumatology: 5 Phase Study Protocol
Published in Current controlled trials in cardiovascular medicine (27-03-2018)“…Over the last 20 years, there have been marked improvements in the availability of effective medications for rheumatic conditions such as gout, osteoporosis…”
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A Bridge Too Far? Real‐World Practice Patterns of Early Glucocorticoid Use in the Canadian Early Arthritis Cohort
Published in ACR open rheumatology (01-01-2022)“…Objective To describe patterns of glucocorticoid use in a large real‐world cohort with early rheumatoid arthritis (RA) and assess the impact on disease…”
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Predictors of Influenza Vaccination in Early Rheumatoid Arthritis 2017‐2021: Results From the Canadian Early Arthritis Cohort
Published in ACR open rheumatology (01-07-2022)“…Objective Adults with rheumatoid arthritis (RA) are at a higher risk for infections, including influenza and related complications. We identified influenza…”
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