Optimizing the use of patients’ individual outcome information – Development and usability tests of a Chronic Kidney Disease dashboard

[Display omitted] •Visualizing patients’ individual outcome data over time can help to motivate patients in their treatment plans.•For effective use of a dashboard during consultations, prioritizing and aligning the topic-agenda together with patients is essential.•Patients and healthcare profession...

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Bibliographic Details
Published in:	International journal of medical informatics (Shannon, Ireland) Vol. 166; p. 104838
Main Authors:	van der Horst, D.E.M., van Uden-Kraan, C.F., Parent, E., Bart, J.A.J., Waverijn, G., Verberk-Jonkers, I.J.A.M., van den Dorpel, M.A., Pieterse, A.H., Bos, W.J.W.
Format:	Journal Article
Language:	English
Published:	Elsevier B.V 01-10-2022
Subjects:	Chronic Kidney Disease Dashboard Participatory development Patient activation Patient-reported outcomes Shared decision making Dashboard Shared decision making Patient activation Chronic Kidney Disease Patient-reported outcomes Participatory development
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Summary:	[Display omitted] •Visualizing patients’ individual outcome data over time can help to motivate patients in their treatment plans.•For effective use of a dashboard during consultations, prioritizing and aligning the topic-agenda together with patients is essential.•Patients and healthcare professionals reported that a consultation dashboard is more effective when patients can access it at home as well.•When developing a consultation dashboard, including end-users (healthcare professionals and patients) from the start is a prerequisite for successful development. Reporting individual clinical and patient-reported outcomes to patients during consultations may add to patients’ disease knowledge and activation and stimulate Shared Decision Making (SDM). These outcomes can be presented over time in a clear way by the means of dashboarding. We aimed to systematically develop a Chronic Kidney Disease (CKD) dashboard designed to support consultations, test its usability and explore conditions for optimal use in practice. For development a participatory approach with patients and healthcare professionals (HCPs) from three hospitals was used. Working groups and patient focus groups were conducted to identify needs and inform the dashboard’s design. Usability was tested in patient interviews. A focus group with HCPs was held to identify conditions for optimal use of the dashboard in daily practice. A dashboard was developed for CKD patients stage 3b-4 visualizing both clinical and patient-reported outcomes over time for use during consultations and accessible for patients at home. Both HCPs and patients indicated that the dashboard can: motivate patients in their treatment by providing feedback on outcomes over time; improve consultation conversations by enhanced preparation of both HCPs and patients; better inform patients, thereby facilitating shared decision making. HCPs and patients both stated that setting a topic agenda for the consultation together is important in effectively discussing the dashboard during consultations. Moreover, the dashboard should not dominate the conversation. Lastly, findings of the usability tests provided design requirements for optimal user-friendliness and clarity. Dashboarding can be a valuable way of reporting individual outcome information to patients and their clinicians as findings suggest it may stimulate patient activation and facilitate decision making. Co-creation with patients and HCPs was essential for successful development of the dashboard. Gained knowledge from the co-creation process can inform others wishing to develop similar digital tools for use in clinical practice.
Bibliography:	ObjectType-Article-1 SourceType-Scholarly Journals-1 ObjectType-Feature-2 content type line 23
ISSN:	1386-5056 1872-8243
DOI:	10.1016/j.ijmedinf.2022.104838