Photovoice and Clubfoot: Using a Participatory Research Method to Study Caregiver Adherence to the Ponseti Method in Perú

Photovoice and Clubfoot: Using a Participatory Research Method to Study Caregiver Adherence to the Ponseti Method in Perú

The Ponseti Method of casting and bracing is the gold-standard treatment for congenital clubfoot in young children. Despite its many advantages, outcomes depend heavily on caregiver adherence to the treatment protocol. Our study explored the experience caregivers had with the Ponseti method using a...

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Bibliographic Details
Published in:The Iowa orthopaedic journal Vol. 35; pp. 160 - 168
Main Authors: Pletch, Alison, Morcuende, Jose, Barriga, Hersey, Segura, Jose, Salas, Alexandro
Format: Journal Article
Language:English
Published: United States The University of Iowa 2015
Subjects:
Adult
Braces - utilization
Caregivers
Casts, Surgical - utilization
Child
Child, Preschool
Clubfoot - diagnosis
Clubfoot - therapy
Developing Countries
Female
Follow-Up Studies
Guideline Adherence
Hospitals, Pediatric
Humans
Infant
Male
Monitoring, Physiologic - methods
Parent-Child Relations
Pediatrics
Peru
Photography
Research Design
Risk Assessment
Time Factors
Peru
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Summary:The Ponseti Method of casting and bracing is the gold-standard treatment for congenital clubfoot in young children. Despite its many advantages, outcomes depend heavily on caregiver adherence to the treatment protocol. Our study explored the experience caregivers had with the Ponseti method using a photography-based participatory research method known as Photovoice. Five adult caregivers were recruited from families pursuing clubfoot treatment at the Children's Hospital in Lima, Perú, during June, 2013. Each was provided a digital camera and training and agreed to photograph their experiences caring for a child undergoing Ponseti Method clubfoot treatment. Participants held four to five weekly one-on-one meetings with the researcher to discuss their photos. They also attended a group meeting at the end of the study to view and discuss photos of other participants. Using photos collected at this meeting, participants identified themes that summarized their experiences with treatment and discussed ways to improve delivery of care in order to support caregiver adherence to treatment. These results were presented to clinicians in Lima who use the Ponseti Method. The Photovoice method allowed researchers and participants to study the experience caregivers have with the Ponseti Method, and results can be used to inform the design of patient-based care models.
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ISSN:1541-5457
1555-1377