Search Results - "Baker, Ronelle"
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The New Zealand Neuromuscular Disease Patient Registry; Five Years and a Thousand Patients
Published in Journal of neuromuscular diseases (2017)“…The New Zealand Neuromuscular Disease Patient Registry has been recruiting for five years. Its primary aim is to enable people with neuromuscular disease to…”
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A Nationwide, Population-Based Prevalence Study of Genetic Muscle Disorders
Published in Neuroepidemiology (01-01-2019)“…Previous epidemiological studies of genetic muscle disorders have relied on medical records to identify cases and may be at risk of selection biases or have…”
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Prevalence of Charcot-Marie-Tooth disease across the lifespan: a population-based epidemiological study
Published in BMJ open (01-06-2019)“…ObjectivesThis population-based study aimed to determine age-standardised prevalence of Charcot-Marie-Tooth disease (CMT) across the lifespan using multiple…”
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To live an ordinary life: resource needs and additional costs for people with a physical impairment
Published in Disability & society (09-08-2015)“…Disabled people face increased risks of living in poverty largely due to lower incomes and extra resource requirements compared to non-disabled people. This…”
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Reducing disablement with adequate and appropriate resources: a New Zealand perspective
Published in Disability & society (26-11-2014)“…This article presents the qualitative findings from a larger mixed methods study of the barriers and costs associated with disability in New Zealand. A social…”
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Estimating the additional cost of disability: Beyond budget standards
Published in Social science & medicine (1982) (01-11-2010)“…Disabled people have long advocated for sufficient resources to live a life with the same rights and responsibilities as non-disabled people. Identifying the…”
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