The Uveitis Patient Passport: A Self-Care Tool

The Uveitis Patient Passport: A Self-Care Tool

Purpose: Patient self-care tools can improve patient outcomes in chronic disease. In uveitis, there is an unmet need for the innovative Uveitis Patient Passport (UPP). This study aims to evaluate the success of the passport's introduction into a tertiary uveitis service through patient experien...

Full description

Saved in:
Bibliographic Details
Published in:Ocular immunology and inflammation Vol. 28; no. 3; pp. 433 - 438
Main Authors: Bailie, Heather N., Liu, Xiaoxuan, Bruynseels, Alice, Denniston, Alastair K., Shah, Peter, Sii, Freda
Format: Journal Article
Language:English
Published: England Taylor & Francis 02-04-2020
Subjects:
Aged
Chronic Disease
Disease Management
Female
Follow-Up Studies
Forms and Records Control
Humans
Male
Middle Aged
patient education
Patient Education as Topic - methods
patient involvement
patient passport
patient voice
qualitative
Self Care - methods
self-care
Surveys and Questionnaires
uveitis
Uveitis - therapy
patient voice
Chronic disease
patient passport
qualitative
patient education
patient involvement
uveitis
self-care
Online Access:Get full text
Tags: Add Tag
No Tags, Be the first to tag this record!
Description
Summary:Purpose: Patient self-care tools can improve patient outcomes in chronic disease. In uveitis, there is an unmet need for the innovative Uveitis Patient Passport (UPP). This study aims to evaluate the success of the passport's introduction into a tertiary uveitis service through patient experience. Methods: The UPP, created in consultation with patients and the multidisciplinary team, was evaluated using a patient questionnaire and mixed quantitative and qualitative methodology. Results: Key themes emerged, with the passport used by participants as a self-care resource and an aid for cross-specialty communication. Patient involvement in evaluation identified key areas for passport development in line with patient needs. These included improving clinician engagement and future transference into a smartphone application. Conclusion: The introduction of the first UPP was a success, especially as a self-care tool for supporting patients in managing their uveitis with the potential to improve patient outcomes.
Bibliography:ObjectType-Article-1
SourceType-Scholarly Journals-1
ObjectType-Feature-2
content type line 23
ISSN:0927-3948
1744-5078
DOI:10.1080/09273948.2019.1569240