Search Results - "BULLINGER, M"
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974 – Psychological health and quality of life of children and adolescents with short stature
Published in European psychiatry (2013)“…Introduction and aims Findings regarding impairments in quality of life of children and adolescents with short stature are not unequivocal. The present paper…”
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Assessing Health-Related Quality of Life in Chronically Ill Children with the German KINDL: First Psychometric and Content Analytical Results
Published in Quality of life research (01-07-1998)“…Health-related quality of life is increasingly being considered as a relevant end-point and outcome criterion in evaluating the effects of medical treatment…”
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3
Why the (dis)agreement? Family context and child-parent perspectives on health-related quality of life and psychological problems in paediatric asthma
Published in Child : care, health & development (01-01-2015)“…Background Children's health‐related quality of life (HrQoL) and psychological problems are important outcomes to consider in clinical decision making in…”
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The psychometric evaluation of the quality of life in short stature youth (QoLISSY) instrument for German children born small for gestational age
Published in Journal of endocrinological investigation (01-10-2018)“…Purpose This study aimed to validate the disease-specific “quality of life in short stature youth (QoLISSY)-instrument” that assessesQuery the health-related…”
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The World Health Organization WHOQOL-100: Tests of the Universality of Quality of Life in 15 Different Cultural Groups Worldwide
Published in Health psychology (01-09-1999)“…The World Health Organization Quality of Life assessment (WHOQOL-100) was developed simultaneously across 15 international field centers and includes 24 facets…”
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Development and testing of an instrument to assess the Quality of Life of Children with Haemophilia in Europe (Haemo-QoL)
Published in Haemophilia : the official journal of the World Federation of Hemophilia (01-03-2004)“…In spite of an increased interest in the assessment of quality of life (QoL) in children, so far no instrument for children with haemophilia is available…”
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First-year predictors of health-related quality of life changes in short-statured children treated with human growth hormone
Published in Journal of endocrinological investigation (01-09-2019)“…Purpose Little attention has been directed towards examining the impact of predictors on change in health-related quality of life (HRQOL) within the course of…”
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Development and pilot-testing of a condition-specific instrument to assess the quality-of-life in children and adolescents born with esophageal atresia
Published in Diseases of the esophagus (01-07-2017)“…SUMMARY The survival rate of children with esophageal atresia has today reached 95%. However, children are at risk of chronic morbidity related to esophageal…”
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Validation of the Italian Quality of Life in Short Stature Youth (QoLISSY) questionnaire
Published in Journal of endocrinological investigation (01-10-2017)“…Purpose The Quality of Life in Short Stature Youth (QoLISSY) questionnaire is a disease-specific instrument developed to assess health-related quality of life…”
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Psychometric Validation of the Haemo-QOL-A in Participants with Hemophilia A Treated with Gene Therapy
Published in Patient related outcome measures (31-07-2022)“…Purpose: The hemophilia-specific health-related quality of life (HRQOL) questionnaire (Haemo-QOL-A) is validated for detecting QOL changes following standard…”
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Predictive value of dysregulation profile trajectories in childhood for symptoms of ADHD, anxiety and depression in late adolescence
Published in European child & adolescent psychiatry (01-06-2018)“…We examined whether there are certain dysregulation profile trajectories in childhood that may predict an elevated risk for mental disorders in later…”
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Health-related quality of life: a pivotal endpoint in benefit assessment of medical procedures
Published in Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz (01-03-2015)“…According to German law, health-related quality of life is a relevant criterion in the early assessment of the benefits of drug treatment. In spite of its…”
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13
Haemophilia Care in Europe: the ESCHQoL study
Published in Haemophilia : the official journal of the World Federation of Hemophilia (01-09-2012)“…Summary The aim of this study was to determine the clinical conditions of patients with haemophilia within Europe as recommended by the European Commission. In…”
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Why should we care about quality of life in persons with haemophilia?
Published in Haemophilia : the official journal of the World Federation of Hemophilia (01-05-2012)“…The very high cost of haemophilia care, including the increase in use of factor prophylaxis in both children and adults requires that funders of clotting…”
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Cross-cultural development and psychometric evaluation of a patient-reported health-related quality of life questionnaire for adults with haemophilia
Published in Haemophilia : the official journal of the World Federation of Hemophilia (01-09-2008)“…Co‐morbidities of haemophilia, such as arthropathy and blood‐borne infections, can adversely affect the quality of life of adult patients with haemophilia. The…”
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The European Organization for Research and Treatment of Cancer QLQ-C30: a quality-of-life instrument for use in international clinical trials in oncology
Published in JNCI : Journal of the National Cancer Institute (03-03-1993)“…In 1986, the European Organization for Research and Treatment of Cancer (EORTC) initiated a research program to develop an integrated, modular approach for…”
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Canadian-French, German and UK Versions of the Child Health Questionnaire: Methodology and Preliminary Item Scaling Results
Published in Quality of life research (01-07-1998)“…Using emerging international guidelines, stringent procedures were used to develop and evaluate Canadian-French, German and UK translations/adaptions of the 50…”
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Quality of life after in-patient rehabilitation in children with obesity
Published in International Journal of Obesity (01-05-2001)“…Treating obesity concerns not only medical concomitants and future complications but also quality of life. The study was planned to investigate the effect of…”
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Developing and Evaluating Cross-Cultural Instruments from Minimum Requirements to Optimal Models
Published in Quality of life research (01-12-1993)“…In the age of increased international collaboration in medical research, the necessity of having at hand cross-culturally applicable instruments for the…”
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Evaluation of a Self-Help Supported Counseling Concept for Children and Adolescents with Disproportional Short Stature
Published in Klinische Padiatrie (01-01-2016)“…Disproportionate short stature may impair the quality of life (QoL) of patients and their families. This study aimed to evaluate a self-help supported…”
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