Search Results - "Avard, Denise"

Attitudes of Canadian researchers toward the return to participants of incidental and targeted genomic findings obtained in a pediatric research setting by Fernandez, Conrad V., Strahlendorf, Caron, Avard, Denise, Knoppers, Bartha M., O’Connell, Colleen, Bouffet, Eric, Malkin, David, Jabado, Nada, Boycott, Kym, Sorensen, Poul H.

“…Purpose: The purpose of this study was to explore the attitudes of genomics researchers in a pediatric setting in the context of regulatory guidance…”
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Pharmacogenetics of opioids for the treatment of acute maternal pain during pregnancy and lactation by Madadi, Parvaz, Avard, Denise, Koren, Gideon

“…There have been an increasing number of clinical studies investigating the relationship between interindividual genetic variability and the safety and efficacy…”
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Citizens' Values Regarding Research With Stored Samples From Newborn Screening in Canada by BOMBARD, Yvonne, MILLER, Fiona A, GIGUERE, Yves, CHAKRABORTY, Pranesh, HAYEEMS, Robin Z, CARROLL, June C, AVARD, Denise I, WILSON, Brenda J, LITTLE, Julian, BYTAUTAS, Jessica P, ALLANSON, Judith, AXLER, Renata

“…Newborn screening (NBS) programs may store bloodspot samples and use them for secondary purposes. Recent public controversies and lawsuits over storage and…”
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Emerging issues in paediatric health research consent forms in Canada: working towards best practices by Dove, Edward S, Avard, Denise, Black, Lee, Knoppers, Bartha M

“…Obtaining a research participant's voluntary and informed consent is the bedrock of sound ethics practice. Greater inclusion of children in research has led to…”
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Recruiting terminally ill patients into non-therapeutic oncology studies: views of health professionals by Kleiderman, Erika, Avard, Denise, Black, Lee, Diaz, Zuanel, Rousseau, Caroline, Knoppers, Bartha Maria

“…Non-therapeutic trials in which terminally ill cancer patients are asked to undergo procedures such as biopsies or venipunctures for research purposes, have…”
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Personalized medicine and access to health care: potential for inequitable access? by McClellan, Kelly A, Avard, Denise, Simard, Jacques, Knoppers, Bartha M

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Clinical Management Recommendations for Surveillance and Risk-Reduction Strategies for Hereditary Breast and Ovarian Cancer Among Individuals Carrying a Deleterious BRCA1 or BRCA2 Mutation by Horsman, Doug, MD, FRCPC, Wilson, Brenda J., MBChB, MSc, MRCP, FFPH, Avard, Denise, PhD, Meschino, Wendy S., MD, FRCPC, Kim Sing, Charmaine, MBChB, FRCPC, Plante, Marie, MD, FRCSC, Eisen, Andrea, MD, FRCPC, Howley, Heather E., MSc, Simard, Jacques, PhD

“…Abstract Background In Canada, there are wide variations in services for patients at risk for hereditary breast and ovarian cancer (HBOC), and clinical…”
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Understanding Umbilical Cord Blood Banking by Kharaboyan, Linda, LLB, Knoppers, Bartha Maria, PhD, Avard, Denise, PhD, Nisker, Jeff, MD, PhD, FRCSC

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Whole-genome sequencing in newborn screening programs by Knoppers, Bartha M, Sénécal, Karine, Borry, Pascal, Avard, Denise

“…The availability of whole-genome sequencing (WGS) is likely to change the practice of population screening programs such as newborn screening (NBS). This…”
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Ethical dimensions of genetics in pediatric neurology: a look into the future by Avard, Denise M, Knoppers, Bartha M

“…Health care providers and families with children who participate in genetic research or who need specialized genetic services, including genetic testing, will…”
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Public Health Genomics (PHG) and Public Participation: Points to Consider by Catherine Heeney, Denise Avard, Jane Kaye, Lucie M. Bucci, Michael M. Burgess, Tarik Sabry, Yanick Farmer

“…Large-scale population biobanks, which aim to collect biological tissues, personal health information, and genomic data, are being introduced worldwide with…”
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Returning incidental findings from genetic research to children: views of parents of children affected by rare diseases by Kleiderman, Erika, Knoppers, Bartha Maria, Fernandez, Conrad V, Boycott, Kym M, Ouellette, Gail, Wong-Rieger, Durhane, Adam, Shelin, Richer, Julie, Avard, Denise

“…Purpose To explore parental perceptions and experiences regarding the return of genomic incidental research findings in children with rare diseases. Methods…”
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Factors influencing intrafamilial communication of hereditary breast and ovarian cancer genetic information by NYCUM, Gillian, AVARD, Denise, KNOPPERS, Bartha M

“…What factors influence intrafamilial communication of hereditary breast and ovarian cancer (HBOC) genetic risk information? Such information can have health…”
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Attitudes of parents toward the return of targeted and incidental genomic research findings in children by Fernandez, Conrad V., Bouffet, Eric, Malkin, David, Jabado, Nada, O’Connell, Colleen, Avard, Denise, Knoppers, Bartha M., Ferguson, Meghan, Boycott, Kym M., Sorensen, Poul H., Orr, Andrew C., Robitaille, Johane M., McMaster, Christopher R.

“…Purpose: We describe parental attitudes toward the return of targeted and incidental genomic research results in the setting of high-risk pediatric cancer and…”
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Personalized medicine and access to health care: potential for inequitable access? by McClellan, Kelly A, Avard, Denise, Simard, Jacques, Knoppers, Bartha M

“…Personalized medicine promises that an individual's genetic information will be increasingly used to prioritize access to health care. Use of genetic…”
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Return of whole-genome sequencing results in paediatric research: a statement of the P3G international paediatrics platform by Knoppers, Bartha Maria, Avard, Denise, Sénécal, Karine

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Are the kids really all right? Direct-to-consumer genetic testing in children: are company policies clashing with professional norms? by HOWARD, Heidi Carmen, AVARD, Denise, BORRY, Pascal

“…The genetic testing of minors within the direct-to-consumer (DTC) genetic testing (GT) context has been given relatively little attention. The issue of testing…”
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Erratum: Return of whole-genome sequencing results in paediatric research: a statement of the P3G international paediatrics platform by Knoppers, Bartha Maria, Avard, Denise, Sénécal, Karine

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To disclose, or not to disclose? Context matters by Rahimzadeh, Vasiliki, Avard, Denise, Sénécal, Karine, Knoppers, Bartha Maria, Sinnett, Daniel

“…Progress in understanding childhood disease using next-generation sequencing (NGS) portends vast improvements in the nature and quality of patient care…”
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Cohort Profile: The Maternal-Infant Research on Environmental Chemicals Research Platform by Arbuckle, Tye E., Fraser, William D., Fisher, Mandy, Davis, Karelyn, Liang, Chun Lei, Lupien, Nicole, Bastien, Stéphanie, Velez, Maria P., von Dadelszen, Peter, Hemmings, Denise G., Wang, Jingwei, Helewa, Michael, Taback, Shayne, Sermer, Mathew, Foster, Warren, Ross, Greg, Fredette, Paul, Smith, Graeme, Walker, Mark, Shear, Roberta, Dodds, Linda, Ettinger, Adrienne S., Weber, Jean-Philippe, D'Amour, Monique, Legrand, Melissa, Kumarathasan, Premkumari, Vincent, Renaud, Luo, Zhong-Cheng, Platt, Robert W., Mitchell, Grant, Hidiroglou, Nick, Cockell, Kevin, Villeneuve, Maya, Rawn, Dorothea F. K, Dabeka, Robert, Cao, Xu-Liang, Becalski, Adam, Ratnayake, Nimal, Bondy, Genevieve, Jin, Xiaolei, Wang, Zhongwen, Tittlemier, Sheryl, Julien, Pierre, Avard, Denise, Weiler, Hope, LeBlanc, Alain, Muckle, Gina, Boivin, Michel, Dionne, Ginette, Ayotte, Pierre, Lanphear, Bruce, Séguin, Jean R., Saint-Amour, Dave, Dewailly, Éric, Monnier, Patricia, Koren, Gideon, Ouellet, Emmanuel

“…Background The Maternal‐Infant Research on Environmental Chemicals (MIREC) Study was established to obtain Canadian biomonitoring data for pregnant women and…”
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