Search Results - "Anne Meskis, Mary"

Dravet syndrome: Characteristics, comorbidities, and caregiver concerns by Villas, Nicole, Meskis, Mary Anne, Goodliffe, Sue

“…The Dravet Syndrome Foundation (DSF) conducted the largest in-depth survey of parents and caregivers of patients with Dravet syndrome (DS) to date, in order to…”
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International consensus on diagnosis and management of Dravet syndrome by Wirrell, Elaine C., Hood, Veronica, Knupp, Kelly G., Meskis, Mary Anne, Nabbout, Rima, Scheffer, Ingrid E., Wilmshurst, Jo, Sullivan, Joseph

“…Objective This study was undertaken to gain consensus from experienced physicians and caregivers regarding optimal diagnosis and management of Dravet syndrome…”
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Optimizing the Diagnosis and Management of Dravet Syndrome: Recommendations from A North American Consensus Panel by Wirrell, Elaine C., MD, Laux, Linda, MD, Donner, Elizabeth, MD, Jette, Nathalie, MD, Knupp, Kelly, MD, Meskis, Mary Anne, Miller, Ian, MD, Sullivan, Joseph, MD, Welborn, Michelle, Pharm D, Berg, Anne T., PhD

“…Objectives To establish standards for early, cost-effective and accurate diagnosis, optimal therapies for seizures, and recommendations for evaluation and…”
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Evaluating adult care in Dravet syndrome upon transferring from pediatrics in the U.S.: A caregiver-based survey study by Nascimento, Fábio A., Hood, Veronica, Yap, Samantha V., Sheikh, Irfan S., Anne Meskis, Mary, Thiele, Elizabeth A.

“…•Almost two-thirds of adults with Dravet syndrome (DS) did not undergo care transfer.•Lack of transfer of care was mostly due to continued follow-up with…”
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Comorbidities of Rare Epilepsies: Results from the Rare Epilepsy Network by Ho, Nhan Thi, Kroner, Barbara, Grinspan, Zachary, Fureman, Brandy, Farrell, Kathleen, Zhang, Jingzhou, Buelow, Janice, Hesdorffer, Dale C., McDonald, Brianne, Weldon, Monica, Bradish, Juliann, Vogel-Farley, Vanessa, Nues, Paige, Dixon-Salazar, Tracy, Bliss, Geraldine, DeWoody, Yssa, Nakagawa, Jo Anne, Kroner, Barbara, Harris, Michael, Arm, Glen, Jackson, Heather, Miller, Ilene, Vozenilek, Gina, Wong, Nora, Davidow, Audrey, Wagner, Kira, Hecker, JayEtta, Egan, Lynn, Grabenstatter, Heidi, Meskis, Mary Anne, Bartenhagen, Mike, Sims, Scotty, Walters, Julie, Schoyer, Lisa, Nye, Kim

“…To describe the prevalence and characteristics of comorbidities in persons with rare epilepsies. Persons with rare epilepsies and caregivers of those affected…”
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Seizure burden in severe early‐life epilepsy: Perspectives from parents by Berg, Anne T., Kaiser, Karen, Dixon‐Salazar, Tracy, Elliot, Andi, McNamara, Nancy, Meskis, Mary Anne, Golbeck, Emily, Tatachar, Priya, Laux, Linda, Raia, Carrie, Stanley, Janice, Luna, April, Rozek, Christian

“…Objectives Seizure burden is typically measured by seizure frequency yet it entails more than seizure counts, especially for people with severe epilepsies and…”
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Improving the quality of life for adults with Dravet syndrome by Meskis, Mary Anne

“…This commentary is on the original article by Lo Barco et al. on pages 838–845 of this issue…”
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Barriers to transition from pediatric to adult care for patients with Dravet syndrome: A focus group study of caregivers by Boyce, Danielle M., Devinsky, Orrin, Meskis, Mary Anne

“…Caregivers of individuals with intellectual and developmental disabilities and epilepsy such as Dravet syndrome (DS) must navigate a complex web of state and…”
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Seizure-Related Outcomes With Real-World Use of Cannabidiol (CBD) in Lennox-Gastaut Syndrome and Dravet Syndrome: BECOME, A Caregiver Survey (P13-8.006) by Salazar, Tracy Dixon, Berg, Anne, Danese, Sherry R., Perry, M. Scott, Meskis, Mary Anne, Le, Ngoc Minh D.

“…Abstract only…”
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Non-Seizure Related Outcomes With Real-World Use of Cannabidiol (CBD) in Lennox-Gastaut Syndrome and Dravet Syndrome: BECOME, A Caregiver Survey (P1-8.003) by Berg, Anne, Perry, M. Scott, Salazar, Tracy Dixon, Meskis, Mary Anne, Le, Ngoc Minh D., Danese, Sherry R.

“…Abstract only…”
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Seizure Outcomes With Cannabidiol (CBD) in Pediatric Versus Adult Patients With Lennox-Gastaut Syndrome (LGS) and Dravet Syndrome (DS): Subgroup Analysis of BECOME, a Caregiver Survey (P14-1.006) by Saurer, Timothy B., Berg, Anne T., Dixon-Salazar, Tracy, Meskis, Mary Anne, Danese, Sherry R., Le, Ngoc Minh D., Perry, M. Scott

“…Abstract only…”
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Nonseizure Outcomes With Cannabidiol (CBD) in Pediatric Versus Adult Patients With Lennox-Gastaut Syndrome (LGS) and Dravet Syndrome (DS): Subgroup Analysis of BECOME, a Caregiver Survey (P14-1.008) by Dixon-Salazar, Tracy, Berg, Anne T., Meskis, Mary Anne, Danese, Sherry R., Saurer, Timothy B., Le, Ngoc Minh D., Perry, M. Scott

“…Abstract only…”
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Nonseizure outcomes with cannabidiol (CBD) in pediatric versus adult patients with Lennox-Gastaut syndrome (LGS) or Dravet syndrome (DS): Subgroup analysis of become, a caregiver survey by Saurer, Timothy B., Dixon-Salazar, Tracy, Berg, Anne T., Meskis, Mary Anne, Danese, Sherry R., Le, Ngoc Minh D., Perry, M. Scott

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Seizure outcomes with cannabidiol (CBD) in pediatric versus adult patients with Lennox-Gastaut syndrome (LGS) or Dravet syndrome (DS): Subgroup analysis of become, a caregiver survey by Saurer, Timothy B., Dixon-Salazar, Tracy, Berg, Anne T., Meskis, Mary Anne, Danese, Sherry R., Le, Ngoc Minh D., Perry, M. Scott

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Caregiver-reported outcomes with real-world use of cannabidiol in Lennox-Gastaut syndrome and Dravet syndrome from the BECOME survey by Berg, Anne T., Dixon-Salazar, Tracy, Meskis, Mary Anne, Danese, Sherry R., Le, Ngoc Minh D., Perry, M. Scott

“…Plant-derived highly purified cannabidiol (CBD) reduced the frequency of seizures associated with Lennox-Gastaut syndrome (LGS) and Dravet syndrome (DS) and…”
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COVID‐19 vaccine in patients with Dravet syndrome: Observations and real‐world experiences by Hood, Veronica, Berg, Anne T., Knupp, Kelly G., Koh, Sookyong, Laux, Linda, Meskis, Mary Anne, Zulfiqar‐Ali, Quratulain, Perry, M. Scott, Scheffer, Ingrid E., Sullivan, Joseph, Wirrell, Elaine, Andrade, Danielle M.

“…Objective Vaccination against the SARS‐CoV‐2 virus is a primary tool to combat the COVID‐19 pandemic. However, vaccination is a common seizure trigger in…”
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Sleep in Dravet syndrome: A parent-driven survey by Van Nuland, Abigail, Ivanenko, Anna, Meskis, Mary Anne, Villas, Nicole, Knupp, Kelly G., Berg, Anne T.

“…•Sleep disturbances are a common occurrence in young people with Dravet syndrome.•Seizures are a common source of sleep disruption.•Parents often sleep with…”
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Nonseizure consequences of Dravet syndrome, KCNQ2-DEE, KCNB1-DEE, Lennox–Gastaut syndrome, ESES: A functional framework by Berg, Anne T., Gaebler-Spira, Deborah, Wilkening, Greta, Zelko, Frank, Knupp, Kelly, Dixon-Salazar, Tracy, Villas, Nicole, Meskis, Mary Anne, Harwell, Vinez, Thompson, Tina, Sims, Scotty, Nesbitt, Gerry

“…Developmental epilepsies and encephalopathies (DEEs) are characterized by many severe developmental impairments, which are not well-described. A functional…”
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Impact of intellectual and developmental disability on quality-of-life priorities in adults with epilepsy by Chiang, Sharon, Moss, Robert, Meskis, Mary Anne, Vogel-Farley, Vanessa, Sullivan, Joseph E., Patel, Anup D., Rao, Vikram R.

“…•Adults with IDD-E often experience poorer quality of life than those without IDD.•We report HR-QOL priorities among adults with IDD-E and compare to those…”
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Psychosocial impact on siblings of patients with developmental and epileptic encephalopathies by Bailey, Laurie D., Schwartz, Lauren, Dixon-Salazar, Tracy, Meskis, Mary Anne, Galer, Bradley S., Gammaitoni, Arnold R., Schad, Carla

“…Caring for children with developmental and epileptic encephalopathies (DEEs) places substantial demands on the entire family unit, including siblings. The…”
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