Search Results - "Angastiniotis, Michael"

Thalassemias: An Overview by Angastiniotis, Michael, Lobitz, Stephan

“…Thalassemia syndromes are among the most serious and common genetic conditions. They are indigenous in a wide but specific geographical area. However, through…”
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Exciting science from the 16th International Conference on Thalassemia and Hemoglobinopathies by Farmakis, Dimitrios, Angastiniotis, Michael, Eleftheriou, Androulla

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Addressing Thalassaemia Management from Patients' Perspectives: An International Collaborative Assessment by Economidou, Eleftheria C, Angastiniotis, Michael, Avraam, Demetris, Soteriades, Elpidoforos S, Eleftheriou, Androulla

“…: The effective management of chronic diseases, particularly hereditary and rare diseases and thalassaemia, is an important indicator of the quality of…”
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Haemoglobinopathies in Europe: health & migration policy perspectives by Aguilar Martinez, Patricia, Angastiniotis, Michael, Eleftheriou, Androulla, Gulbis, Beatrice, Mañú Pereira, Maria Del Mar, Petrova-Benedict, Roumyana, Corrons, Joan-Lluis Vives

“…Major haemoglobinopathies (MH), such as thalassaemia syndromes (Thal) and sickle cell disorders (SCD), are genetic defects associated with chronic anaemia and…”
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The Outcomes of Patients with Haemoglobin Disorders in Cyprus: A Joined Report of the Thalassaemia International Federation and the Nicosia and Paphos Thalassaemia Centres (State Health Services Organisation) by Angastiniotis, Michael, Christou, Soteroula, Kolnakou, Annita, Pangalou, Evangelia, Savvidou, Irene, Farmakis, Dimitrios, Eleftheriou, Androulla

“…Haemoglobinopathies, including thalassaemias and sickle-cell syndromes, are demanding, lifelong conditions that pose a significant burden to patients,…”
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Patient Care: Unmet Needs Globally by Angastiniotis, Michael, Eleftheriou, Androulla

“…Literature demonstrates that long survival and a good quality of life are achieved where the patients’ needs for holistic care are recognised and the…”
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TIF Standards for Haemoglobinopathy Reference Centres by Angastiniotis, Michael, Eleftheriou, Androulla, Naveed, Mohammed, Assaf, Ali Al, Polynikis, Andreas, Soteriades, Elpidoforos S., Farmakis, Dimitrios

“…Haemoglobin disorders are hereditary, lifelong and characterised by the need for multifaceted management. The question of quality in meeting standards of care…”
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Beta thalassemia: Looking to the future, addressing unmet needs and challenges by Angastiniotis, Michael

“…Thalassemia management has reached new milestones, with new therapies promising the dawning of a new era. However, conventional and new approaches require…”
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Improved survival in thalassemia major patients on switching from desferrioxamine to combined chelation therapy with desferrioxamine and deferiprone by Telfer, Paul T, Warburton, Fiona, Christou, Soteroula, Hadjigavriel, Michael, Sitarou, Maria, Kolnagou, Anita, Angastiniotis, Michael

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TIF 2.0: The Thal e-Course and TIF Expert Patients’ Programme for Disease-Related Education and Self-Management Skills in Thalassaemia by Antoniadou, Victoria, Angastiniotis, Michael, Eleftheriou, Androulla

“…In response to the fundamental shift that has been taking place in the way chronic diseases are perceived and managed and the increasingly established role of…”
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Juggling between the Cost and Value of New Therapies: Does Science Still Serve Patient Needs? by Eleftheriou, Androulla, Farmakis, Dimitrios, Englezos, Panos, Tuli, Shobha, Mylona, Elena, Constantinou, George, Elbard, Riyad, Al-Awadhi, Saeed Jafaar, Al-Nahyan, Sheikha Sheikha Bint Seif, Ficarra, Robert, Saad, Michelle Abi, Skafi, Anton, Brunetta, Loris Angelo, Hashemi, Fatemeh, Michalaki, Eleni, Baset Mohd Merdas, Abdul, Angastiniotis, Michael

“…Thalassaemia International Federation (TIF), representing the united voice of people with thalassaemia and their families globally, has been striving for more…”
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P135: THE CLINGEN HEMOGLOBINOPATHY VARIANT CURATION EXPERT PANEL by Coralea Stephanou, C, Petros Kountouris, P, Carsten W Lederer, C, Celeste Bento, C, Cornelis L Hartveld, C, Jan Traeger‐Synodinos, J, John S Waye, J, Zhiyu Peng, Z, Irene Fylaktou, I, Hashim Halim‐Fikri, H, Tamara T. Koopmann, T, Landry Nfonsam, L, Jun Sun, J, Franck Nzengu‐Lukusa, F, Michael Angastiniotis, M, Catherine Badens, C, Bertha Ibarra Cortes, B, Johan T. den Dunnen, J, Jacques Elion, J, Suthat Fucharoen, S, Kyriaki Michailidou, K, Thessalia Papasavva, T, Antonio Piga, A, Raj Ramesar, R, Swee Lay Thein, S, Léon Tshilolo, L, Zilfalil Bin Alwi, Z, Marina Kleanthous, M

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3rd Pan-European Conference on Haemoglobinopathies and Rare Anaemias, 24–26 October 2012, Limassol, Cyprus by Eleftheriou, Androulla, Angastiniotis, Michael, Loukopoulos, Demitrios, Kattamis, Christos, Meletis, John

“…This abstract book contains all abstracts presented to the 3rd Pan-European Conference on Haemoglobinopathies and Rare Anaemias, 24–26 October 2012, Limassol,…”
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The changing epidemiology of the ageing thalassaemia populations: A position statement of the Thalassaemia International Federation by Farmakis, Dimitrios, Giakoumis, Anastasios, Angastiniotis, Michael, Eleftheriou, Androulla

“…Therapeutic advances in β‐thalassaemia have gradually lead to a significant improvement in prognosis over the past few decades. As a result, patients living in…”
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COVID‐19 and thalassaemia: A position statement of the Thalassaemia International Federation by Farmakis, Dimitrios, Giakoumis, Anastasios, Cannon, Lily, Angastiniotis, Michael, Eleftheriou, Androulla

“…Objectives Many patients with haemoglobinopathies, including thalassaemia and sickle cell disease, are at increased risk of developing severe complications…”
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Recommendations for Centres of Expertise in Rare Anaemias. The ENERCA White Book by Vives Corrons, Joan-Lluis, del Mar Mañú Pereira, María, Romeo-Casabona, Carlos, Nicolás, Pilar, Gulbis, Béatrice, Eleftheriou, Androulla, Angastiniotis, Michael, Aguilar-Martínez, Patricia, Bianchi, Paola, Van Wijk, Richard, Heimpel, Hermann, De la Salle, Barbara, Mosca, Andrea

“…The Community added value of Centres of Expertise (CoE) and European Reference Networks (ERN) is particularly high for rare diseases (RD) due to the rarity of…”
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The Need for Translational Epidemiology in Beta Thalassemia Syndromes by Soteriades, Soteris, Angastiniotis, Michael, Farmakis, Dimitrios, Eleftheriou, Androulla, Maggio, Aurelio

“…Epidemiology is the practical tool to provide information on which policy makers should base planning of services. Epidemiological data for thalassemia is…”
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Growth and endocrine disorders in thalassemia: The international network on endocrine complications in thalassemia (I-CET) position statement and guidelines by De Sanctis, Vincenzo, Soliman, Ashraf, Elsedfy, Heba, Skordis, Nicos, Kattamis, Christos, Angastiniotis, Michael, Karimi, Mehran, Yassin, Mohd Abdel Daem, El Awwa, Ahmed, Stoeva, Iva, Raiola, Giuseppe, Galati, Maria, Bedair, Elsaid, Fiscina, Bernadette, El Kholy, Mohamed

“…The current management of thalassemia includes regular transfusion programs and chelation therapy. It is important that physicians be aware that endocrine…”
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The Need for Translational Epidemiology in Beta Thalassemia Syndromes: A Thalassemia International Federation Perspective by Soteriades, Soterios, Angastiniotis, Michael, Farmakis, Dimitrios, Eleftheriou, Androulla, Maggio, Aurelio

“…Epidemiology is the practical tool to provide information on which policy makers should base planning of services. Epidemiological data for thalassemia is…”
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Thalassaemia Registries: A Call for Action. A Position Statement from the Thalassaemia International Federation by Farmakis, Dimitrios, Angastiniotis, Michael, El Ghoul, Maria-Melina, Cannon, Lily, Eleftheriou, Androulla

“…Disease registries can be extremely powerful evidence generating tools while providing a central meeting point for all implicated stakeholders, facilitating…”
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