Search Results - "Alpern, Adrianne N"

Development of Health-Related Quality of Life Instruments for Young Children With Disorders of Sex Development (DSD) and Their Parents by Alpern, Adrianne N, Gardner, Melissa, Kogan, Barry, Sandberg, David E, Quittner, Alexandra L

“…Research in disorders of sex development (DSD) is hindered by a lack of standardized measures sensitive to the experiences of affected children and families…”
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Clustered randomized controlled trial of a clinic-based problem-solving intervention to improve adherence in adolescents with cystic fibrosis by Quittner, Alexandra L., Eakin, Michelle N., Alpern, Adrianne N., Ridge, Alana K., McLean, Katherine A., Bilderback, Andrew, Criado, Kristen K., Chung, Shang-En, Riekert, Kristin A.

“…In Cystic Fibrosis (CF), adherence to pulmonary medications is about 50% and decreases during adolescence. Effective interventions have not been integrated…”
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Initial evaluation of the Parent Cystic Fibrosis Questionnaire—Revised (CFQ-R) in infants and young children by Alpern, Adrianne N, Brumback, Lyndia C, Ratjen, Felix, Rosenfeld, Margaret, Davis, Stephanie D, Quittner, Alexandra L

“…Abstract Background There is an urgent need to evaluate treatments for young children with cystic fibrosis (CF); however, efforts have been hampered by a lack…”
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Challenges of disorders of sex development: diverse perceptions across stakeholders by Kogan, Barry A, Gardner, Melissa, Alpern, Adrianne N, Cohen, Laura M, Grimley, Mary Beth, Quittner, Alexandra L, Sandberg, David E

“…Disorders of sex development (DSD) are congenital conditions in which chromosomal, gonadal, or anatomic sex development is atypical. Optimal management is…”
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Assessing health-related quality of life in disorders of sex development: phase I - item generation by Sandberg, David E, Gardner, Melissa D, Kogan, Barry A, Grimley, Mary Beth, Cohen, Laura, Alpern, Adrianne N, Quittner, Alexandra L

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Predictors of treatment integrity in an adherence intervention delivered by multidisciplinary healthcare providers by Alpern, Adrianne N

“…Adherence to medical regimens is a national public health concern across chronic health conditions (Balkrishnan, 2005), with problem-solving (PS) interventions…”
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