Acceptability of prenatal diagnosis of sickle cell anaemia (SCA) by female patients and parents of SCA patients in Nigeria

The acceptability of prenatal diagnosis (PND) of sickle cell anaemia (SCA) as a means of controlling sickle cell disorder in Nigeria was examined using a structured questionnaire. † † Copies may be obtained from the senior author. The respondents were comprised of 92 adult female patients with SCA,...

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Bibliographic Details
Published in:	Social science & medicine (1982) Vol. 41; no. 3; pp. 433 - 436
Main Authors:	Durosinmi, M.A., Odebiyi, A.I., Adediran, I.A., Akinola, N.O., Adegorioye, D.E., Okunade, M.A.
Format:	Journal Article
Language:	English
Published:	Oxford Elsevier Ltd 01-08-1995 Elsevier Pergamon Press Inc
Series:	Social Science & Medicine
Subjects:	Abortion Acceptability Adolescent Adult Aged Anemia, Sickle Cell - genetics Anemia, Sickle Cell - prevention & control Anemias. Hemoglobinopathies Biological and medical sciences Congenital Illness Developing Countries Diseases Diseases of red blood cells Female Females Fetuses Genetic Counseling Health Behavior Hematologic and hematopoietic diseases Hemoglobin, Sickle - genetics Humans Male Medical Decision Making Medical sciences Middle Aged Nigeria Parents Parents & parenting Patient Acceptance of Health Care Patients Phenotype Pregnancy Prenatal Diagnosis Questionnaires Reproductive Technologies Screening Sickle Cell Anaemia Sickle cell anemia Social research Tropical medicine Nigeria Africa Human Hemoglobinopathy Sickle cell anemia Social perception Attitude Parent Hemopathy Genetic disease Pregnancy Prenatal Hemolytic anemia Genetic counseling Female Diagnosis Public health
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Summary:	The acceptability of prenatal diagnosis (PND) of sickle cell anaemia (SCA) as a means of controlling sickle cell disorder in Nigeria was examined using a structured questionnaire. † † Copies may be obtained from the senior author. The respondents were comprised of 92 adult female patients with SCA, aged 15–20 (23 ± 6) years; 53 HbAS mothers, aged 20–61 (37 ± 11) years and 48 HbAS fathers, aged 33–65 (46 ± 8) years. More than 85% of the respondents would like PND to be offered in Nigeria and 92% of the HbAS mothers as well as 86% of the fathers would like to have the investigation or allow their wives to go through the procedure, respectively. Only 35% of the patients as compared to 63% of the mothers and 51% of the fathers would opt for termination of an affected pregnancy. Fear of the complications of abortion and religious convictions were the two most frequently cited reasons for opposing pregnancy termination. The high percentage of parents who would opt for termination of an affected pregnancy was associated with the societal emphasis on perfection and on previous experience in management of SCA patients. It is interesting that most of the respondents still favoured effective genetic counselling as the best means of controlling SCA.
Bibliography:	ObjectType-Article-2 SourceType-Scholarly Journals-1 ObjectType-Feature-1 content type line 23 ObjectType-Article-1 ObjectType-Feature-2
ISSN:	0277-9536 1873-5347
DOI:	10.1016/0277-9536(94)00361-V